Cripple Punk - Blog Posts

Trying to dump my sufferings to feel healthy again. I can't bear it anymore.

!!READ IF YOU'RE STUDYING JAPANESE AND HAVE EPILEPSY!!

There's an app called "Memory hint", and please, don't download it if you have photosensitive epilepsy or at least consult with a professional, because there's "Kanji catch" mode that could POSSIBLY trigger a seizure, at least if you won't lower speed. I almost had a seizure because of it.

Please, be careful with apps and videos you're watching, because sometimes there's no TW!

People's honest reaction when there are MUCH more physical diseases than infections ones or breaking your limb

I'm so fucked up with these diseases thing. Everyone is taking in my disability first instead of my personality. Everyone wants only to discuss my disease instead of my new hobby. Maybe I'm really just a code in ICD... Ehh... Why can't I throw away my feelings and just accept the fact of me being a living movement disorder.

"But my ribs are hurting too, so help me!!" No, you're saying that just to force me to do something you don't, while I just want to curl up in my bed with this stinging pain in my ribs.

"Diagnosis isn't an excuse!!" Then what is an excuse for my uncontrollable movements, huh?

It's always "we will represent disabilities!" Until it comes to dystonia/atethosis/chorea/etc. Until they see a REAL seizure, not when a person just shakes on the ground. Until when they see how a person can't get up to go to the toilet due to fatigue. Until they see how a person suffers from pain all over their body, although they ate BUNCH of pain killers. Until disability ISN'T aesthetically lay in bed and sit on the internet. Until they see how a person can't go out on the street without someone who could help them, so they are forced to bed rotting all the time. Just please, if you speak about disabilities, talk about REAL disabilities, not "aesthetically" laying in the bed while everyone is pampering you.

How to explain to people that there's NO NEED in restraining a person when they have a seizure, like bro, just put them on their side and count time, and if the seizure doesn't end or lasts more, call the ambulance. NOT RESTRAIN a person, because either you either them will end up with a trauma.

Just accept the fact that flash warning doesn't count as a warning when it appears on a 0,1 second with a small font in the bottom of the screen. I hate it when people can't take a minute to make a good tw.

Why can't I just give up and stop visiting doctors and let myself rot until it's too late? I feel like I'm already starting to decompose, just leave me alone, so I can rot

Some people are just: "we're tolerant! we would never bully or laugh at anyone!"

And then they see a disabled person, and start to laugh at them, or say "you're just pretending!" shit

When people are saying that I'm sick, I don't really want to admit it. I don't feel like I'm suffering enough, like, c'mon... Isn't the word sick means just something more hard to bear? I'm literally doing nothing, but laying in bed and complaining about how hard my illness is, while I still can walk and do some things... Jeez, how tired I'm of these physical conditions...

Having a serious disease is just like:

"Oh, that's just an illness and I don't need to feel guilty because of it, because I can't control it"

And then:

"FUCK, HOW MUCH I HATE MYSELF, I CAN'T DO BASIC THINGS, I'M ALWAYS ISOLATED, MY DISEASE JUST BECAME A MEME, WHY DO I HAVE IT??? JUST WHY?? IS THAT I DESERVE??? WHY I SHOULD I LOVE MYSELF WHILE EVERY FUCKING SECOND I'M WASTING AWAY??!"

People who have any physical issues, I've created a discord server for you all! Hope that you'll have fun!

https://discord.com/invite/MgU9nvnK

Okay, okay, I try to understand everything, but... why PE it's required? I know that sports it's important, and it helps being healthy, and etc, but why I should do sports when after run I feel nausea? Why can't I just do some exercises, and that's all? For example, I also have problems with hands (tremor, but for now I'm not diagnosed yet) and my tremor gets harder and harder when I do sports, and in the end I feel bad and humiliated. So why can't I just don't go on PE?

It’s almost been a year since I blogged this (wow)! Since then, I have made a few friends on this hellsite, who I am really thankful for!

I am still opening to meeting new people and creating a community for myself on and off Tumblr.

I am relatively new to tumblr and am looking for friends and community. I am a Black, Indigenous, Queer, Disabled person. Would you be willing to share a few blog recs?

I'm sorry I can't think of any specific blogs off the top of my head, but I did recently stumble upon @disabledclassifieds. It's a blog that disabled people can use to post and reply to personal ads from other disabled people, and I feel like it may be a slightly better source of information than I am 😅 [grinning face with water drop emoji]

And (I don't know how new you are so I apologise if this comes across as patronising, it is not supposed to be), I personally found it a bit easier to integrate into a community in the disability punk tags. Cripplepunk, madpunk, audpunk etc. etc. Little corners of tumblr for various communities.

And (because I know sometimes it's easier if someone else makes the first move) I will encourage anyone who sees this, if they want to, to reach out to you! (If you would like that, of course)

descriptive transcript:

Haben, a Black woman in her thirties with long dark hair, speaks to the camera, a vibrant blue wall behind her.

Haben: If you're a creator, add transcripts to your videos. I can't see videos, I can't hear videos, but I can read transcripts.

Pins on a Braillenote Touch pop up and down in their Braille cells. Each cell has eight pins that are either positioned up or down depending on the specific Braille letter.

Haben: Braille displays connect to phones and laptops, allowing Braille readers to access the internet this way. Descriptive transcripts should have both the visuals of what's happening on screen and speech and key sounds for the video. Really good descriptive transcripts captivate readers just like the best novels.

The Braille display disappears and the video shows Haben in the same room.

Haben: Once we have widespread accessibility, it'll be easier for deafblind people to share our stories and also participate in conversations. I love learning from lives different from mine and in order for me to do that, I need transcripts. I look forward to reading all your transcripts!

end transcript.

sharing for people who aren't aware this is a thing & can put it into practice, video transcript copied from haben's instagram (please let me know if the format needs to be adjusted in some way 👍🏻)

i wish disabled people got as much free shit as people think we got. i want snacks