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You know what is a terrible disease that people don’t talk about enough? Eczema. People think that its just itchy skin, but it’s not. It’s an autoimmune disease that has no cure and doctors don’t even know what actually causes it.
I’m dealing with a bad flare right now due to the heatwave in my area and all the smoke in the air from wild fires and my skin fucking hurts. Really fucking badly all over my whole body. It hurts to move. It itches so bad but when I give in and scratch, it hurts more. It hurts and it itches and all I can do is lay here and try to distract myself.
It makes it hard to sleep. I wake up from pain every time I switch positions.
It’s on my neck and I can’t turn my head without major discomfort.
It’s on my back and torso and I can’t turn my body without major discomfort.
It’s on my legs and it hurts to walk.
It’s on my arms and it hurts to reach for anything.
All I can put on my body is Vaseline because anything else used to moisturize makes it burn.
It feels like I’m on fire. My immune system is literally killing my skin.
And guess what? One tube of ointment, the only thing that gives me relief, costs $100. My insurance only pays for it every two weeks but a tube only lasts me five days.
Eczema isnt just a nuisance, it’s terrible disease that causes pain and scarring and sometimes even disfigurement. It deserves more attention and sufferers deserve more support. The medicines we need to stop our suffering are exorbitantly priced and we have no choice but to pay whatever amount they demand because we cannot function without it. And in the fight to lower medicine costs, we are forgotten because people think it’s a minor disease with minimal symptoms whos affects are only superficial in most people’s eyes.
Don’t forget about us in your disability activism.