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EDSers- do lidocaine patches work for you? Should the area that you have it on be numb to touch? (I don’t think it’s doing anything, pain is the same and isn’t numb at all but idk if it’s normal or an eds thing?)
spaci1701 replied to your post “Just in case you’re ever embarrassed about doing something silly or…”
So nice that he’s willing to offer his professional opinion of your husband’s teeth for free. Did he have some good news for you? Does it involve pliers?
So I had a CT scan, and lots of other stuff done, and they “couldn’t find anything immediately wrong” on film, which he very quickly assured me, didn’t mean there wasn’t a problem.
He thinks the pain coming from one particular tooth (the one making me want to rip my face off) is a filling I might be allergic to which is causing the tooth to self destruct, so before he takes the whole tooth out he wants to see if he can fix the filling and pack it with something I wont be allergic to and just try to save me from any more surgery. So that’s what I will be doing next week to try and get me out of pain. (We need to wait for some testing to come back before he feels happy putting things into my jaw)
He’s also willing to extract my root canal teeth because in his own words “there’s no way they should hurt like that”, but first he wants to send me to an orthodontist, to evaluate my bite because my jaw muscles are a mess, and it’s because my teeth have been ground so far down by the previous dentist none of them touch, so I’m performing gymnastics just to be able to chew and eat. And braces would help with that.
We also discovered that I also have a cluster of excess of nerve bundles, all on the lower left side of my jaw, which is why I can get drilled on the right side of my face and not flinch, but the left side never goes numb. Which is why no matter what they are doing, they are not able to get me numb for procedures.
Which is why the root canals on the left side of my face all feel like they are failing, despite appearing fine on film and upon re-opening. It’s my face recovering from the trauma of being fully “live” while having the roots stripped out. When I described my root canal experiences he sat with his eyes closed gripping his head in his hands. He also doesn’t think with my inflammation issues I am a candidate for root canal or implants, he thinks my body will reject them based purely on the fact that my root canal teeth just won’t heal, like my jaw is trying to push them out.
He also thinks one of those nerve bundles might have got hit by a needle when they were trying to get me numb—based on some residual bruising I have inside my mouth. So now my nerves are all freaking out and healing from being quite literally stabbed multiple times, which explains why NONE of my pain killers are working either.
He was very much “why are you not screaming from pain right now” and I was very “I am too tired to scream, just help me, please help me”. He promised me he’d find a way or find someone else who could.
I cried.
Several times.
Because someone believes me.
And they think they might know what to do. Also they made me a cup of tea when I started crying and held my hand.
They seem like good people who care. So I’m hopeful.
I’m still in a LOT of pain, but I’m really hopeful.
Hey kid, look at me.
I want you to T-pose. Turn your right thumb up and your left thumb doen and look at your right thumb. Move your arms up and down a bit until you feel a nerve running from your armpit to your palm. Now turn your right thumb down and your left thumb up, and look at your left thumb. Keep your chest facing forward and your shoulders back. Move your arms again until you feel that nerve again. Keep alternating between these two for a minute, or look at each thumb thirty times each.
Now sit down. Put your left hand firmly under your left buttock, palm down. Keep your shoulders back and put your right hand over the crown of your head, very gently pulling it to the right. Do this for thirty seconds, then do it again but with your right hand under your right buttock.
These are stretches for the nerves in your arms, and are very good for people who sit behind a computer a lot, or fibre artists, or you name it. Do them daily. They will hurt in the beginning, but keep doing them, even after the pain has gone, or it will return and you'll have to start all over.