Hey Kid, Look At Me.

The Other Half of the Social Model of Disability

Lots of people in fandom are aware of the Social Model of Disability, which is a direct contrast to the Medical Model of Disability. Problem is, most of those people only understand half of the Social Model.

If you don't know what I'm talking about, the "in a nutshell" version is that the medical model views disability as something that is broken and which needs to be fixed, and little or no consideration is given beyond trying to cure it (and little or no consideration is given to the needs and wishes of the person who has it). The social model of disability, on the other hand, says that the thing that disables a person is the way society treats them. So, for example, if someone is paralyzed and can't walk, what disables them from going places is buildings that are not wheelchair accessible. (Or possibly not being able to afford the right type of wheelchair.) Inaccessible spaces and support equipment you can't afford are choices society makes, not a problem with the disabled person.

People then take this to mean that the only problem with disability is the society that surrounds it, and therefore in some utopian future where capitalism is no more and neither is ableism or any other form of bigotry, all problems disabled people have will be solved.

Except that what I've just described is not actually what the social model of disability says. Or, rather, it's only half of what the social model of disability says.

The actual social model of disability begins with a distinction between impairments and disabilities. Impairments are parts of the body/brain that are nonstandard: for example, ears that do not hear (deafness), organs that don't work right (e.g. diabetes), limbs that don't work (paralysis), brain chemistry that causes distress (e.g. anxiety, depression), the list goes on. The impairment may or may not cause distress to the person who has it, depending on the type of impairment (how much pain it causes, etc.) and whether it's a lifelong thing they accept as part of themselves or something newly acquired that radically changes their life and prevents them from doing things they want to do.

And then you have the things that disable us, which are the social factors like "is there an accessible entrance," as described above.

If we ever do get a utopian world where everyone with a disability gets the support they need and all of society is designed to include people with disabilities, that doesn't mean the impairments go away. Life would be so much better for people with impairments, and it's worth working towards, but some impairments simply suck and would continue to suck no matter what.

Take my autism. A world where autism was accepted and supported would make my life so much easier ... and yet even then, my trouble sleeping and my tendency to hyperfixate on things that trigger my anxiety would still make my life worse. I don't want to be cured of my autism! That would change who I am on a fundamental level, and I like myself. My dream is not of a world where I am not autistic, but a world in which I am not penalized for being autistic and have the help I need. And even in that world, my autism will still sometimes cause me distress.

There are some impairments--conditions that come with chronic pain, chronic fatigue, etc.--where pretty much everyone with that impairment agrees that the ultimate goal is a cure. But nobody knows how long a cure will take to find (years? decades? centuries?), whereas focusing on the social things disabling you can lead to improvement in your daily life right now.

In conclusion: the social model of disability is very valuable, and much superior to the medical model on a number of levels. But: please don't forget that the social model makes a distinction between disability and impairments, and even if we reach every goal and get rid of all the social factors that disable people, some impairments will be fine and cause no distress to the people who have them, some will be a mixed bag, and some will still be major problems for the people who have them.

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sometimes people try to tell me that scientists are paragons of rationality and I have to break it to them that I have yet to work in a lab that didn’t have at least one weird secret shrine in it

what the fuck was wrong with people that Labyrinth was originally a flop. How could they take any aspect of it so for granted. How could they fucking do that to Jim Henson. Newspapers were calling it boring and even ugly. I want to go back in time and beat their asses.

NO ONE knows how to use thou/thee/thy/thine and i need to see that change if ur going to keep making “talking like a medieval peasant” jokes. /lh

They play the same roles as I/me/my/mine. In modern english, we use “you” for both the subject and the direct object/object of preposition/etc, so it’s difficult to compare “thou” to “you”.

So the trick is this: if you are trying to turn something Olde, first turn every “you” into first-person and then replace it like so:

“I” →  “thou”

“Me” →  “thee”

“My” →  “thy”

“Mine” →  “thine”

Let’s suppose we had the sentences “You have a cow. He gave it to you. It is your cow. The cow is yours”.

We could first imagine it in the first person-

“I have a cow. He gave it to me. It is my cow. The cow is mine”.

And then replace it-

“Thou hast a cow. He gave it to thee. It is thy cow. The cow is thine.”

I thought it was fairly normal to feel empathy for bad people.

I thought it was common, even.

But after my Elon/Grimes post... now I'm wondering if I was mistaken about that.

I wrote a post about Trump being traumatized after his assassination attempt and a post about his poor adaptation to aging. I expressed sympathy for him in both cases. But I still maintain my white hot hatred of him and wish for him to face consequences.

Elon was abused by his father. Some of the stories are incredibly tragic. Hearing those stories triggers an involuntary response in my emotional systems that I can't stop no matter how much I despise present-day Elon. I also wonder if that abuse never occurred maybe we wouldn't be dealing with this current clusterfuck.

I have never held so much anger towards a single person as I do my brother. But I also see him as a victim of abuse. I know he was once a really good person and he was slowly corrupted. I feel sorry for him. I mourn the amazing person he used to be. And I still love him.

But that doesn't make me any less angry.

I want to step away from the art-vs-artist side of the Gaiman issue for a bit, and talk about, well, the rest of it. Because those emotions you're feeling would be the same without the art; the art just adds another layer.

Source: I worked with a guy who turned out to be heavily involved in an international, multi-state sex-slavery/trafficking ring.

He was really nice.

Yeah.

It hits like a dumptruck of shit. You don't feel stable in your world anymore. How could someone you interacted with, liked, also be a truly horrible person? How could your judgement be that bad? How can real people, not stylized cartoon bogeymen, be actually doing this shit?

You have to sit with the fact that you couldn't, or probably couldn't, have known. You should have no guilt as part of this horror — but guilt is almost certainly part of that mess you're feeling, because our brains do this associative thing, and somehow "I liked [the version of] the guy [that I knew]", or his creations, becomes "I made a horrible mistake and should feel guilty."

You didn't, loves, you didn't.

We're human, and we can only go by the information we have. And the information we have is only the smallest glimpse into someone else's life.

I didn't work closely with the guy I knew at work, but we chatted. He wasn't just nice; he was one of the only people outside my tiny department who seemed genuinely nice in a workplace that was rapidly becoming incredibly toxic. He loaned me a bike trainer. Occasionally he'd see me at the bus stop and give me a lift home.

Yup. I was a young woman in my twenties and rode in this guy's car. More than once.

When I tell this story that part usually makes people gasp. "You must feel so scared about what could have happened to you!" "You're so lucky nothing happened!"

No, that's not how it worked. I was never in danger. This guy targeted Korean women with little-to-no English who were coerced and powerless. A white, fluent, US citizen coworker wasn't a potential victim. I got to be a person, not prey.

Y'know that little warning bell that goes off, when you're around someone who might be a danger to you? That animal sense that says "Something is off here, watch out"?

Yeah, that doesn't ping if the preferred prey isn't around.

That's what rattled me the most about this. I liked to think of myself as willing to stand up for people with less power than me. I worked with Japanese exchange students in college and put myself bodily between them and creeps, and I sure as hell got that little alarm when some asian-schoolgirl fetishist schmoozed on them. But we were all there.

I had to learn that the alarm won't go off when the hunter isn't hunting. That it's not the solid indicator I might've thought it was. That sometimes this is what the privilege of not being prey does; it completely masks your ability to detect the horrors that are going on.

A lot of people point out that 'people like that' have amazing charisma and ability to lie and manipulate, and that's true. Anyone who's gotten away with this shit for decades is going to be way smoother than the pathetic little hangers-on I dealt with in university. But it's not just that. I seriously, deeply believe that he saw me as a person, and he did not extend personhood to his victims. We didn't have a fake coworker relationship. We had a real one. And just like I don't know the ins-and-outs of most of my coworkers lives, I had no idea that what he did on his down time was perpetrate horrors.

I know this is getting off the topic, but it's so very important. Especially as a message to cis guys: please understand that you won't recognize a creep the way you might think you will. If you're not the preferred prey, the hind-brain alarm won't go off. You have to listen to victims, not your gut feeling that the person seems perfectly nice and normal. It doesn't mean there's never a false accusation, but face the fact that it's usually real, and you don't have enough information to say otherwise.

So, yeah. It fucking sucks. Writing about this twists my insides into tense knots, and it was almost a decade ago. I was never in danger. No one I knew was hurt!

Just countless, powerless women, horrifically abused by someone who was nice to me.

You don't trust your own judgement quite the same way, after. And as utterly shitty as it is, as twisted up and unstead-in-the-world as I felt the day I found out — I don't actually think that's a bad thing.

I think we all need to question our own judgement. It makes us better people.

I don't see villains around every corner just because I knew one, once. But I do own the fact that I can't know, really know, about anyone except those closest to me. They have their own full lives. They'll go from the pinnacles of kindness to the depths of depravity — and I won't know.

It's not a failing. It's just being human. Something to remember before you slap labels on people, before you condemn them or idolize them. Think about how much you can't know, and how flawed our judgement always is.

Grieve for victims, and the feeling of betrayal. But maybe let yourself off the hook, and be a bit slower to skewer others on it.

spaci1701 replied to your post “Just in case you’re ever embarrassed about doing something silly or…”

So nice that he’s willing to offer his professional opinion of your husband’s teeth for free. Did he have some good news for you? Does it involve pliers?

So I had a CT scan, and lots of other stuff done, and they “couldn’t find anything immediately wrong” on film, which he very quickly assured me, didn’t mean there wasn’t a problem.

He thinks the pain coming from one particular tooth (the one making me want to rip my face off) is a filling I might be allergic to which is causing the tooth to self destruct, so before he takes the whole tooth out he wants to see if he can fix the filling and pack it with something I wont be allergic to and just try to save me from any more surgery. So that’s what I will be doing next week to try and get me out of pain. (We need to wait for some testing to come back before he feels happy putting things into my jaw)

He’s also willing to extract my root canal teeth because in his own words “there’s no way they should hurt like that”, but first he wants to send me to an orthodontist, to evaluate my bite because my jaw muscles are a mess, and it’s because my teeth have been ground so far down by the previous dentist none of them touch, so I’m performing gymnastics just to be able to chew and eat. And braces would help with that.

We also discovered that I also have a cluster of excess of nerve bundles, all on the lower left side of my jaw, which is why I can get drilled on the right side of my face and not flinch, but the left side never goes numb. Which is why no matter what they are doing, they are not able to get me numb for procedures.

Which is why the root canals on the left side of my face all feel like they are failing, despite appearing fine on film and upon re-opening. It’s my face recovering from the trauma of being fully “live” while having the roots stripped out. When I described my root canal experiences he sat with his eyes closed gripping his head in his hands. He also doesn’t think with my inflammation issues I am a candidate for root canal or implants, he thinks my body will reject them based purely on the fact that my root canal teeth just won’t heal, like my jaw is trying to push them out.

He also thinks one of those nerve bundles might have got hit by a needle when they were trying to get me numb—based on some residual bruising I have inside my mouth. So now my nerves are all freaking out and healing from being quite literally stabbed multiple times, which explains why NONE of my pain killers are working either.

He was very much “why are you not screaming from pain right now” and I was very “I am too tired to scream, just help me, please help me”. He promised me he’d find a way or find someone else who could.

I cried.

Several times.

Because someone believes me.

And they think they might know what to do. Also they made me a cup of tea when I started crying and held my hand.

They seem like good people who care. So I’m hopeful.

I’m still in a LOT of pain, but I’m really hopeful.

Friendly reminder that bisexual, pansexual, asexual, and aromantic people do not experience “straight passing privilege”.

Identity erasure is not a privilege, it is oppression.

Okay so when I got sucked into the phantom zone last week while watching youtube shorts a lot of the content it fed me was ADHD tips and a lot of it was either useless for me or redundant but there was one REALLY good tip about taking breaks that wasn't about taking breaks it was about RETURNING from breaks and the tip is: when you are about to go on a break, before you step away from your task (work, craft project, school stuff) decide what you'll do as the first thing when you sit back down at your task and set up your workspace to do that thing.

That means you've got an easy re-entry point to go back to doing the thing instead of sitting back down and having to make a decision or having to reorient from break mode to task mode. You have pre-reoriented and can just go back into working mode.

I've been doing this by circling what my next task on my tasklist is and bringing up the windows that I'll need for the task before I step away from my desk.

Brilliant hack, works great for me, hope it works great for you as well.