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Cripple Punk - Blog Posts
As a disabled user i have tried this many times, but that is a myth and may insted trigger the drowning debuff.
i don't get why people are scared of dying. you do know you can just disable it in the accessibility settings, right?
Patch note: references to "falling" and "falls" have been perceived as frightening. To better enable casual references and conversation these episodes have been renamed "unexpectedly sitting" and "unplanned lying down".
RB (reblog) if you are chronically online to cope with being chronically ill 🥲
I’ve decided I’m now asking people if they have a cane kink every time they ask me if I hit people with it.
After all, why else are you asking a perfect stranger how often they use their mobility aid to cane people?
The sun is a deadly laser, I am high as a kite, and this man in WalMart stopped me to ask if I’ve ever hit someone up the back of the head with my cane.
I wanted to.
Instead I replied, “No way! I only go for the back of the knee,” and mimed a swinging motion.
that awkward moment when you run out of hairspray mid spikes and look like a bug…
HELL YEAH
DISABILITY PRIDE MONTH!!!!!
This is my first disability pride month with a diagnosis!
"Pride month is over"
WRONG! Your pride month is over! Me and all the other disabled queers are having pride month two: disability edition
Random vent:
I legitimately do not know what is going to happen to me in the future. All I want is to be a firefighter, but two days into emt school and I'm already having a flare up. We went to visit the fire station today, and I nearly passed out just from standing still. I was always such an athletic child, and everyone expected that I would kick ass in this field, yet here I am, struggling to stand. I already knew that I would have a very short, painful career, but now I don't know if I can do it at all.
please don't be a pressure sore please don't be a pressure sore please don't be a pressure sore
more vent below the cut, see warnings
The passive suicidal ideation that comes with having a physical disability is hard. I'm sure I'm not the only person who feels this way. I grew up with an ever-increasing pain tolerance due to my condition to the point where ripping nails from my nailbeds became Just One of My Habits, because it hurt less than my condition, and having my nailbed be deformed anyways before that habit formed certainly didn't help. I was the kid who always tried in sports, even if I was never athletic. I was the kid who got an A's, even when going to school was exhausting and painful and, to be honest, I was and still am really convinced that my inherent worth is attributed to what work I can produce. In all the jobs I've worked, I've done what I could, even if it wasn't...Enough. In moment like these, where my head is clouded with exhaustion and I lay in bed, in too much pain to do anything but tap my achey and tingly fingers on a keyboard as every movement sends sharp stinging pain up and down my entire arm region and drips down into my torso, and I have to get all my work done, but I can't. Think. I can't. Move. I feel like I'm an old cat, just waiting to die, except I'm a young adult human being who just wants the pain to be over. It'll never be over. This isn't to say I'm actively suicidal. I'm not- At least not anymore. Just living in a body that is in agony all the time gets hard. Really hard. And I start to wonder and think about how good I would feel if I could just slip into a sleep and not have to wake up to the pain, and the exhaustion, and the lack of limb functionality, and the fainting, and the falling, and the humiliation, and the shame- And I sometimes wish I could die, before everyone realizes how much of a disappointment I am because of this. I can't work up to the same par as everybody else can, even though I manage to get everything done up to a very good quality, it take some about 4x longer to do it compared to an able-bodied person. oinfdgionfdnndndnnnfvfn
the next time i go to the cripplepunk tag or sum and see some hoe with adhd talking sum about 'adhd paralysis' or 'how adderall is LITERALLY lifesaving!' or about how 'omg this post about physical disability is SO me but with my ADHD lol see I'm included', I will show up to their house and replace all of their food with bricks and replace all of their clothes with bamboo paper and replace all water in their home with slightly out of date soy milk an-
goodnight to people who are unable to run goodnight to people who used to be known for 'running/skipping' everywhere until it became far too painful and dangerous goodnight to people who have a walking gait that shows deformity and 'disturbs others' goodnight to people who have limbs that 'move wrong' goodnight to people who walk with a limp goodnight to people who stumble and fall goodnight to people who use a mobility aid goodnight to people who use elevators goodnight to people who use shower-chairs goodnight to people who use ramps
pots flareups are so weird because wtf do you mean my heart is going sicko mode sfter walking 10 feet???
WHAT DO YOU MEAN MY HEART RATE IS RISING WHILE SITTING DOWN???
I feel like I should do an intro post so might as well do it now!
Hello!!!!
I am the host of a DID system! This intro will be focused around me as I will be the one who posts most often! I use I/me instead of Us/we 90% of the time ,although this is not because of anything specific other than preference.
Anywho, my name is Jasper! I am a MINOR!!!!!!! I am autistic and have ADHD as well as an unknown personality disorder (BPD?? AVPD??? Who knows but it's suspected I've got both). I am physically disabled and mentally delayed but please do not infantilize me as I am a teenager and can think and act for myself!
I am demiaroace and aceflux as well as a gaybian, lesboy, and turigirl! I am Novigender meaning my gender identity takes a very long time to explain and can be difficult or impossible to understand, although I will do my best! I am a woman, a man, nonbinary, agender, none, all, a mix, and each individually. I am everything and nothing and something between. I am not pangender or bigender or agender, I am each individually. But at the same time, I am all three. This makes all attraction I feel inherently queer. I use any pronouns besides they/hir/fae and I prefer a mix of a few (although that isn't necessary!!)
DNI: Endos and anything of the sort, creeps, nsft blogs, right wing fucks, bigots, homophobes, transphobes, disrespectful assholes
If you are anything that isn't on the DNI list, interact!! Any non-NSFT questions are welcome as long as they are respectful!!
My foot has been hurting for the last five days and is making it agonizing to try and do my PT.
Nothing looks wrong, it’s not a joint (I think?)
It doesn’t hurt all the time but if I bend my foot up towards my ankle it hurts or point it.
This is weird
cripplepunk is visually centered around use of mobility aids and accessibility, the word cripple being reclaimed from those who used it as a word against us physically disabled people and our bodies.
i see no way anyone could think cripplepunk let alone the word cripple could ever include able bodied individuals, just because it doesnt talk about mentally disabled people and focuses on the physically disabled, doesnt mean youre being swept under the rug and erased.
just because a space doesnt include you doesnt mean you should butt in and force it to. make your own damn space instead. youre not being invalidated or treated as invisible because some "exclusive club" exists and youre not on the invite list.
cripplepunk doesnt offer you anything if youre physically abled. thats not a threat, not an insult, its a fucking statement. a fact.
cripplepunk is made by and for PHYSICALLY disabled folks and always has. those who have mental disabilities ON TOP OF being physically disabled are welcomed thats a given, but if you arent physically disabled this space literally has nothing for you, nothing you can relate to, the word cripple isnt even for you. thats not some made up rule to shoo away people we dont like thats just a fucking fact on how it is.
"the brain is an organ so i AM physically disabled" do you need a mobility aid because of your mental disability? no, do you get sick and dizzy whenever you stand up because of our disabled brain? no. do you need additional help in school because your mental disability hinders your neurological function not your ability to function PHYSICALLY? yes? then stop being a selfish idiot and stop trying to get into cripplepunk as its not a space thats for you.
being mentally disabled is entirely different from being physically disabled, both are equally valid and deserve accommodations and support but when a space is made for one and not the other, only having the other does not warrant you to push into that space.
it should not have to be said so many times let alone at all
cripplepunk is a space for physically disabled bodies.
[ID: banner reading "This blog is protected by De Rolo family and co." in all caps. It has an orange cloud background. On the left is the De Rolo coat of arms and on the right is the symbol of Vox Machina]
Call me a gymnast cause I am jumping through hoops trying to get a diagnosis
Digital Detox Helping With Chronic Illness
I did what I like to call a "digital detox" by limiting 90% of the apps I could use on my phone, especially social media. I do this because I find so much negativity in the community. Trust me when I say I know being chronically is hard. But there is no reason any of us need a 24/7 reminder of it.
I also find it difficult when I'm stuck at home for a good majority of my days, with no work, it's hard to keep myseld entertained all day. I end up relying on my phone and I get incredibly sad in the process.
As some of you may know if you watch my YouTube, I was off social media for 7 months. I found it beneficial. While I'm ready to be back on social media, I needed a break
So I only used my phone to film my journey, listened, to music, and text two people. My time spent on my phone was half of what it usually was (really just using the camera app.)
Would you be interested in me uploading to my YouTube channel my journey of a digital detox while living with a chronic illness? Should I do this more often? Would you consider doing this?
Signs you're getting better that are NOT symptomatic | Chronic Illness Addition
You're adapting: Instead of pushing yourself past your limits, you learn ways to make your life with chronic illness just a little easier. It could be sitting while you beush your teeth, or opting for a bath instead of s shower.
You stop telling yourseld you "aren't disabled enough:" Maybe you're an ambulatory wheel chair user or you don't always need a cane to walk around. Stop telling yourself that just because your chronic Illness differs from day to day, means you aren't disabled enough. Go buy that cane or walker and use it when you need to. You don't need anyone's permission. You don't need to prove anything to anyone
You've learned to ask for help: I know we all want to be independent and not rely on other people for help. But even able body people need help from time to time. Our body function differently, and it's okay to need extra help than the average person. You're not a burden.
You priorities your mental health: Mental health is extremely important especially when dealing with chronic illness. You may be grieving your old body or experiencing jealousy. This is all normal. Ways that have healped my mental health tremendously are making a gratitude list to remind me what I'm grateful for, creating a schedule, and minimizing the time on my phone.
Please feel free to add to the list
HAPPY CHRONIC ILLNESS NEWS
Im so excited to say that after two months of having days that were an absolute roller coaster, I finally had a good day. A true good one. I don't mean my usual days where there is a sprinkle of good in a scoop of bad ice cream.
I usually spend my days doom scrolling, bored, and napping.
But my therapist and I came up with a plan to write down everything I do. This way I can create a schedule. I filled my day with low effort activities and rested. I drew, colored, did my makeup, did a graditude list, meditated. I'm so happy to prove to myself I in fact CAN have good days despite my illness
I wish everyone a good day with lots of rest
Hate the Fury at myself and my body every time I have to rehabilitate a joint or muscle that went into spasm and refused to work the way I need it to
My body doesn't even recognise that moving a joint is an option, which is so fucking annoying when it's your wrist or something locked in đź’… position, and then it unlocks and it's literally just gravity or spasm based movement for the next god knows how long
Wishing the people who remove benches in public spaces a very die
something that might be hard to grasp is that. physically disabled people can do everything "right", follow all the recommended programs from doctors and medical practitioners and lose weight and do this exercise and that diet and this and that and they still can stay disabled. they still can get worse.
and it's imperative to understand that. doing things this way can be soul crushing. it's difficult, if not impossible for some people. and many people will not be able to do things "right" and will stay disabled or get worse. some people might, accidentally or on purpose, make their disability worse themselves. and those people don't deserve to be disabled any more than people who you think doesn't.
we cannot, cannot assign a moral value to disability. disability isn't a punishment for doing right or wrong. it is not a judgement. there is no moral value associated with being disabled.
people you find wonderful will be disabled. people who you think suck will be physically disabled. people who had no pre-existing condition, who did everything "right" and were healthy before will be disabled. people who had absolutely no means to change their lifestyle, because of poverty or location or some systematic issue, will be disabled. and people will be disabled as a direct result of their choices.
none of that, absolutely none of it, is an indication of whether that person "deserves" to be disabled or not. none of it is a reflection of their moral character. disability is simply a neutral fact of life.
adding on SERVICE ANIMALS! Insurance does not cover them. A few orgs provide them for free, yes, but 1) you have to live in the area they service 2) you still have to pay for travel to and from graduation, and for the upkeep of the dog 3) you have to hope one of these orgs trains the kind of dog you need 4) you have to wait years until you're matched, bc these free programs are the most popular. Money would help immensely.
money is such an underrated accessibility option.
like people want to think any disabled person who is after money is morally suspect some way, because they're not asking for "treatments" or "accommodations" like a lot of our issues can be fixed way more easily with money. can't drive? paying for a taxi is often one of the more accessible alternatives. can't cook? you can pay more to have prepared food delivered to you. food restrictions? that food straight up costs more money. can't clean? you can pay for someone to do that. house inaccessible? having (lots) of money can help with that, you get the gist.
having money won't make us abled. it also won't stop our symptoms from being distressing, painful, or debilitating. but there's a huge gap in experience between the average poor disabled person and someone who's actually wealthy. you can buy your way out of some of the difficult situations most disabled people are left to rot in. wanting money, needing money, asking for money is pretty natural when it's such a useful tool. why get so weird about disabled people wanting money like i'm pretty sure everyone wants money anyway
Hi all! Can you boost?
I’m a severely disabled trans migrant trying to move to a safer country (away from my trafficker). My visa lawyer bill is due this week…and I’m still over 90% short of meeting my goal.
Art commissions are open here to help fundraise!
Art examples:
I need to say something and I need y'all to be calm
if it isn't actively bad or harmful, no representation should be called "too simple" or "too surface level"
I have a whole argument for this about the barbie movie but today I wanna talk about a show called "the babysitters club" on Netflix
(obligatory disclaimer that I watched only two episodes of this show so if it's super problematic I'm sorry) (yes. I know it's based on a book, this is about the show)
this is a silly 8+ show that my 9 year old sister is watching and it manages to tackle so many complex topics in such an easy way. basic premise is these 13 year old girls have a babysitting agency.
in one episode, a girl babysits this transfem kid. the approach is super simple, with the kid saying stuff like "oh no, those are my old boy clothes, these are my girl clothes". they have to go to the doctor and everyone is calling the kid by her dead name and using he/him and this 13 year old snaps at like a group of doctors and they all listen to her. it's pure fantasy and any person versed in trans theory would point out a bunch of mistakes.
but after watching this episode, my little sister started switching to my name instead of my dead name and intercalating he/him pronouns when talking about me.
one of the 13 years old is a diabetic and sometimes her whole personality is taken over by that. but she has this episode where she pushes herself to her limit and passes out and talks about being in a coma for a while because of not recognizing the limits of her disability.
and this allowed my 9 year old sister to understand me better when I say "I really want to play with you but right now my body physically can't do that" (I'm disabled). she has even asked me why I'm pushing myself, why I'm not using my crutches when I complain about pain.
my mom is 50 years old and watching this show with my sister. she said the episode about the diabetic girl helped her understand me and my disability better. she grew up disabled as well, but she was taught to shut up and power through.
yes, silly simple representation can annoy you if you've read thousands of pages about queer liberation or disability radical thought, but sometimes things are not for you.
i used to love jokes about canes/crutches users referring to them as their additional legs. but THIS IS NO JOKE ANYMORE.
i almost feel every step of my cane. my wrist? i feel it's more of like my knee. what do you mean i have two legs? no, i have three. yes, third one starts at my shoulder, why?
oh, i need two free hands for something... *sarcastic thought* yeah let me just pull out my second arm. *realizing i actually do have a second arm* oh well...
sometimes i just don't realize i'm holding a cane. i don't realize i can stop holding it. my fingers are glued to the handle, thanks for asking.
today, i was sitting down and thought that i needed to re-tie my shoe laces. i made knots tighter on first shoe. second shoe. then i got puzzled because where's the third shoe.
yes it IS my third leg now. she's adopted.