You Know How People Talk About Seeing In Black And White And When Things Are More Complicated Or Nuanced

My “my songs” 🎀🎧

“my songs” are songs where you go “this song is for me it is mine.”

people can have the same “my songs” that doesn’t make them any less yours, they’re just also someone else’s mine.

its just songs that get you on another level, songs that represent you!

I despise the fact that disabled people can never look happy. Or show any form of joy.

Because the moment we do, suddenly we are 'not disabled enough'. As if our existence is solely meant to be pain and misery.

hey all, originally this post used the term “deformed” and some people who were born with illnesses that have caused them to look different have asked me and other people to not use that word unless they have an illness that causes such. completely valid so i changed it.

i was not born with an illness that did that, however i have many medical issues that have lead to my body looking different to those around me. i do not know whether that makes me “valid” in using that term and i dont feel comfortable sharing my medical history to try and “prove” as such. so i will no longer be using that term online.

i also want to point out the OR in the first sentence of this post. i am bringing up two different occurrences here, and expanding on the disabled one.

love and kindness i am not offended by any of this 🩷

being unattractive or physically different/disabled DOES NOT equal being morally bad/evil. there is an atrocious amount of ableism that occurs when someone doesn’t look “normal.” and i am so fucking sick of it.

in media it is (almost) always the villains who are different/disabled. and media is a massive part of how people form their world views.

i want to mention arcane for example, because people seem to be confused about what good representation is. people praise the hell out of that show, and for good reason it has great things about it, but people told me it had good disabled representation. so i watched it. and while parts of the disabled representation is good.. almost all physically different/disabled characters are portrayed as bad/evil/villains at some point in their story (or all of it.) and then by the end of the show most of them are dead.

abled people i need you to understand that is not good representation. please look out for these tropes it happens ALL the time.

good representation includes different/disabled characters who are heroes and morally “good” too.

if you make all your villains physically different and none of them are heroes i hate you. i am so sick of this.

really struggling with this atm.

ive lost all the strength i fought so hard for the past two years. it doesnt seem fair that it can all be taken away so fast.

im exhausted. trying is exhausting.

disabled consistency prt. 2 prt. 1 here (u dont need to read it to understand this post)

what happens to consistency, to habits, when you have a dynamic disability?

i want us to understand the differences between having a consistent body and having an ever changing one. sometimes you could be so healthy you are working/studying, exercising a few times a week, socialising, and independently caring for yourself. but other times.. you’re bedbound? can’t even shower and brush your teeth twice a day? can’t keep up with texting your friends or social media? what habit is surviving that.

you work so hard to build habits and follow routines you and your doctors have set, and then you achieve it, but then it all gets taken away in a flare-up. you wonder what the point is. its a constant vicious cycle. even abled people know its hard to build habits. it takes time. and you might not have that time.

for abled people, theres no time limit on building a habit. they might have a goal in mind of when they want to achieve it, but theres no actual clock ticking in the background.

for me, and for other dynamically disabled people, we are on a time crunch. you may not be aware of it, but you are. it’s always a race to get things done while you can, build those habits and routines and get consistent and get your life together while you can. because even if you’re not thinking it, you are living on a countdown until your next flare-up. until the next crash, the next time you lose all your progress.

and that cycle, is exhausting. it’s like building a sandcastle right on the shore. you build it and you get to revel in it for a second. then it’s gone. there may be a little bump in the sand where your hard work had just stood, but essentially, you are starting from scratch. while the abled people are up the beach a few metres and their sand is perfectly wet and perfectly dry and the waves never reach it.

then those same people, tell you to just keep building. “eventually you’ll get there!” “keep trying!” “habits take time!” they say. but how? there will always be another wave.

understanding this difference in experience is so important if you want to understand why you can’t just tell a disabled person to form habits or be consistent and expect results.

UHC website has an article entitled "Response to Misinformation" in which it explicitly labels Luigi as a killer despite a trial not taking place. Which in itself is defamation and very telling of their concerns with pushing a narrative more than a legal and ethical perspective.

exactly 😭😭 its always like “aw im so sorry i get it ive been through the same” and then ur like ah shit not another one.. :((

it hurts hearing other disabled people talk about medical mistreatment.

like i am partly grateful to not be alone of course, but i really wish it wasnt a common or even standard occurrence.

breaks my heart.

the levels of brain fog i am experiencing i might as well be in fucking silent hill

why arent more able bodied people fighting for disability advocacy?

see disabled people as humans, as peers, as equals.

we deserve access to everything you do. we deserve the chance to have a happy and comfortable life just as you do.

dont push us out of sight and out of mind.

we do not deserve that. we are equals.

let's recap what we've learned about the United States in the last few days.

things that are terrorism:

allegedly shooting a healthcare CEO whose company generated more pure profit (not revenue, profit) in a year than the GDP of 94 countries, exclusively by denying coverage to people who pay for it

a 42-year-old mother of 2 using the wrong combination of 7 words during a heated conversation with a call center employee at a health insurance company who was in the process of denying her health coverage.

things that are not terrorism:

mass shooting in a Black church to incite a race war

going to a BLM protest specifically to kill protestors

a neo-nazi running over a crowd of people, killing a woman

targeting and killing 23 latinos in an el paso, texas walmart

killing 12 people in a theatre, shooting 58 others, rigging your apartment with explosives

a QAnon groyper killing 7 and shooting ~50 at a 4th of July parade

killing 3 people and shooting several others at a Planned Parenthood in defense of the unborn

stalking someone relentlessly and then killing them and their child despite months of the victim making police reports

any one of the 1,200 murders committed by US police yearly, the vast majority being minorities

tightening your border while ~100 immigrants (including children) drown every year in the Rio Grande

United Healthcare killing an unnknowable number of elderly people by using faulty AI to deny medically necessary coverage

Aetna killing a woman by refusing to cover her cancer care

Blue Cross killing a 6-year-old by denying her appendicitis surgery

Cigna killing a 17-year-old child by denying her liver transplant

the pharmaceutical industry killing half a million people with opioids in the name of producing revenues in 2023 that rivaled the GDPs of countries like Spain, Mexico, and Australia.

the United States killing 45,000 people a year because they can't access health coverage

make sure you keep this guide handy the next time you find yourself interacting with your insurance company or any other millionaire, billionaire, or an individual who is part of a protected class such as a CEO or president of a corporation.