I Must Be Doing Something Right To Get An Invitation To Both The Honors Program And National Society

‘Tis the Season

I don’t know where this is from, but I found it in a thread on Facebook and I am CRYING

My 5th birthday party was circle themed. I had a circle cake, everyone surrounded me in a circle to sing “happy birthday circle.” And I screamed at them if they didn’t listen to me.

Terrifying meltdown occurred over a wiffle ball bat, a piñata, and my grandmother, who wouldn’t stop talking so I could listen for the “whistle” like my dad taught me.

If/when you have children please let them (as soon as they're able) pick the theme of their birthday parties.

The girl who used to do my hair let her toddler pick the theme of her 3rd birthday and she chose Target. Like, the store. So everything was red and white and covered in bullseyes and I'm just so full of joy looking at the pictures on Facebook right now because it is obvious that this little girl is having the time of her life and that her parents put so much love and creativity into making the decorations and cupcakes.

Children will come up with some of the best and most fascinating ideas if you let them.

Climate change is real and happening faster than scientists thought.

This is really helpful!

Autistic overload is like internet bandwidth.

If you're struggling to understand why you are good on some days and bad on others, one way to think of your brain is like internet access.

Some people have direct access, so any information incoming is fast, easy to process and unless they start being really silly and downloading 20 movies at once, not too much is going to interrupt their experience.

Autistic brains are more like public internet access. It's not that greatly connected in the first place, it can't handle large data packets, and if you're not careful you may get some unwanted information downloaded.

If you're accessing this when not much is happening, you may not get a bad experience. Not much is draining the limited bandwidth and processing times are faster.

The next day, however, you may get a completely different experience and even just connecting is impossible.

So, it's okay to sometimes switch off that access and just recover for a while.

it’s fun to stay at the Y

Well this explains a lot. I started getting migraines at 7 as well.

Not so fun facts about my migraines:

15-20% of people get migraines

0.002% of people get Hemiplegic migraines

Sometimes I get regular run of the mill migraine. The kind where your head hurts and lights and sounds are horrible.

Sometimes the left side of my face goes numb and I can’t smile right

Sometimes my right arm gets weak

Sometimes both of my legs get weak and I can’t walk without a cane or walker

Sometimes I struggle to find words

Sometimes the vision in my right eye is just not quite right

Sometimes I get terrible vertigo

Sometimes I get super nauseated

Sometimes my teeth hurt

Sometimes I feel super hot/flushed

Sometimes I get all of the above

Autism is an independent risk for migraines

Autistic children are far more likely to experience migraines

One study showed that autistic people were twice as likely to experience migraine

I started getting migraines at age 7

My triggers are weather changes (I can usually tell it’s going to rain based on my aura) and hormonal changes, especially PMS

These are the two triggers that are impossible to avoid

Thank you all for listening to me complain while I lay in bed miserable because I can’t walk or smile or have the lights on.

The Mother of All Snowflakes WIP #1

Pattern by Mary Corbet of Needle ‘n Thread

Link

I’ve been itching to get back to cross stitching for a while now. I have one all planned out for a friend, but I can’t find my white aida cloth to start. At least, I think it’s big enough for what I need. Not working makes things challenging when needing to purchase supplies. The black aida I purchased earlier this year was just a bit to narrow for what I need, so I decided to repurpose it. To snowflakes, of course! Did a little Google search, found this free pattern and here I am. Also, black aida is a bitch to work on. it feels like a miniature litebrite. I’m a quarter done with it after starting on Friday, which is weird to think. It’s been good for keeping my hands and mind busy, especially with the wife having seizures off and on all day. She was supposed to have an ambulatory EEG this weekend, but our outlets in our 1950s house are too small to accommodate what the tech needed to plug the camera into. Now we get to schedule a 72 hour EEG at the hospital in the middle of respiratory disease hell season. Weeee!

In better news, our plumbing is getting replaced tomorrow. Or rather, the plumbing replacement process starts tomorrow. Jackhammering at 8 am! Who doesn’t love getting woken up to jackhammering right next to the bedroom? Although I just thought of something. Wife’s seizures have been sound triggered as well; this could get really messy.

Happy stims

(via)

It’s finished! Now to frame it.