me while writing: ah yes, this character should do this, it feels so natural with what they're saying
me while editing: why the FUCK does he lean on the doorway SEVENTEEN TIMES IN THIS CHAPTER
"everyone should care about accessibility because most people will become disabled at some point in their life" is a logical argument and I understand its popularity
however, everyone should care about accessibility because disabled people are fellow human beings living in the same society as you who deserve the same rights as you
thank you good night
[large text: The Mask Trope, and Disfiguremisia in Media]
If you followed this blog for more than like a week, you're probably familiar with “the mask trope” or at least with me complaining about it over and over in perpetuity. But why is it bad and why can't this dude shut up about it?
Let's start with who this trope applies to: characters with facial differences. There is some overlap with blind characters as well; think of the blindfold that is forced on a blind character for no reason. Here is a great explanation of it in this context by blindbeta. It's an excellent post in general, even if your character isn't blind or low vision you should read at least the last few paragraphs.
Here's a good ol’ tired link to what a facial difference is, but to put it simply:
If you have a character, who is a burn survivor or has scars, who wears a mask, this is exactly this trope.
The concept applies to other facial differences as well, but scars and burns are 99% of the representation and “representation” we get, so I'll be using these somewhat interchangeably here.
The mask can be exactly what you think, but it refers to any facial covering that doesn't have a medical purpose. So for example, a CPAP mask doesn't count for this trope, but a Magic Porcelain Mask absolutely does. Bandages do as well. If it covers the part of the face that is “different”, it can be a mask in the context used here.
Eye patches are on thin ice because while they do serve a medical purpose in real life, in 99.9% of media they are used for the same purpose as a mask. It's purely aesthetic.
With that out of the way, let's get into why this trope sucks and find its roots. Because every trope is just a symptom of something, really.
Roughly in order of the least to most important reasons...
[large text: Why It Sucks]
It's overdone. As in — boring. You made your character visibly different, and now they're no longer that. What is the point? Just don't give them the damn scar if you're going to hide it.
Zero connection with reality. No one does this. I don't even know how to elaborate on this. This doesn't represent anyone because no one does this.
Disability erasure. For the majority of characters with facial differences, their scars or burns somehow don't disable them physically, so the only thing left is the visible part… aaand the mask takes care of it too. Again, what's the point? If you want to make your disabled character abled, then just have them be abled. What is the point of "curing" them other than to make it completely pointless?
Making your readers with facial differences feel straight up bad. I'm gonna be honest! This hurts to see when it's all you get, over and over. Imagine there's this thing that everyone bullied you about, everyone still stares at, that is with you 24/7. Imagine you wanted to see something where people like you aren't treated like a freakshow. Somewhat unrealistic, but imagine that. That kind of world would only exist in fiction, right? So let's look into fiction- oh, none of the positive (or at least not "child-murderer evil") characters look like me. I mean they do, but they don't. They're forced to hide the one thing that connects us. I don't want to hide myself. I don't want to be told over and over that this is what people like me should do. That this is what other people expect so much that it's basically the default way a person with a facial difference can exist. I don't want this.
Perpetuating disfiguremisia.
[large text: "Quick" Disfiguremisia Talk]
It's quick when compared to my average facial difference discussion post, bear with me please.
Disfiguremisia; portmanteau of disfigure from “disfigurement” and -misia, Greek for hatred.
Also known as discrimination of those mythical horrifically deformed people.
It shows up in fiction all the time; in-universe and in-narrative. Mask trope is one of the most common* representations of it, and it's also a trope that is gaining traction more and more, both in visual art and writing. This is a trope I particularly hate, because it's a blatant symptom of disfiguremisia. It's not hidden and it doesn't try to be. It's a painful remainder that I do not want nor need.
*most common is easily “evil disfigured villain”, just look at any horror media. But that's for another post, if ever.
When you put your character in a mask, it sends a clear message: in your story, facial differences aren't welcome. The world is hostile. Other characters are hostile. The author is, quite possibly, hostile. Maybe consciously, but almost always not, they just don't think that disfiguremisia means anything because it's the default setting. No one wants to see you because your face makes you gross and unsightly. If you have a burn; good luck, but we think you're too ugly to have a face. Have a scar? Too bad, now you don't. Get hidden.
Everything here is a decision that was made by the author. You are the one who makes the world. You are the person who decides if being disabled is acceptable or not there. The story doesn't have a mind of its own, you chose to make it disfiguremisic.
It doesn't have to be.
[large text: Questions to Ask Yourself]
Since I started talking about facial differences on this blog, I have noticed a very specific trend in how facial differences are treated when compared to other disabilities. A lot of writers and artists are interested in worldbuilding where accessibility is considered, where disabled people are accepted, where neurodivergence is seen as an important part of the human experience, not something “other”. This is amazing, genuinely.
Yet, absolutely no one seems to be interested in a world that is anything but cruel to facial differences. There's no escapist fantasies for us.
You see this over and over, at some point it feels like the same story with different names attached.
The only way a character with a facial difference can exist is to hide it. Otherwise, they are shamed by society. Seen as something gross. I noticed that it really doesn't matter who the character is, facial difference is this great equalizer. Both ancient deities and talking forest cats get treated as the same brand of disgusting thing as long as they're scarred, as long as they had something explode in their face, as long as they've been cursed. They can be accomplished, they can be a badass, they can be the leader of the world, they can kill a dragon, but they cannot, under any circumstances, be allowed to peacefully exist with a facial difference. They have to hide it in the literal sense, or be made to feel that they should. Constantly ashamed, embarrassed that they dare to have a face.
Question one to ask yourself: why is disfiguremisia a part of your story?
I'm part of a few minority groups. I'm an immigrant, I'm disabled, I'm queer. I get enough shit in real life for this so I like to take a break once in a while. I love stories where transphobia isn't a thing. Where xenophobia doesn't come up. But my whole life, I can't seem to find stories that don't spew out disfiguremisia in one way or the other at the first possible opportunity.
Why is disfiguremisia a default part of your worldbuilding? Why can't it be left out? Why in societies with scarred saviors and warriors is there such intense disgust for them? Why can't anyone even just question why this is the state of the world?
Why is disfiguremisia normal in your story?
Question two: do you know enough about disfiguremisia to write about it?
Ask yourself, really. Do you? Writers sometimes ask if or how to portray ableism when they themselves aren't disabled, but no one bothers to wonder if maybe they aren't knowledgeable enough to make half their story about their POV character experiencing disfiguremisia. How much do you know, and from where? Have you read Mikaela Moody or any other advocates’ work around disfiguremisia? Do you understand the way it intersects; with being a trans woman, with being Black? What is your education on this topic?
And for USAmericans... do you know what "Ugly Laws" are, and when they ended?
Question three: what does your story associate with facial difference — and why?
If I had to guess; “shame”, “embarrassment”, “violence”, "disgust", “intimidation”, “trauma”, “guilt”, “evil”, “curse”, “discomfort”, “fear”, or similar would show up.
Why doesn't it associate it with positive concepts? Why not “hope” or “love” or “pride” or “community”? Why not “soft” or “delicate”? Dare I say, “beauty” or “innocence”? Why not “blessing”? “Acceptance”?
Why not “normal”?
Question four: why did you make the character the way they are?
Have you considered that there are other things than “horrifically burned for some moral failing” or “most traumatic scenario put to paper”? Why is it always “a tough character with a history of violence” and never “a Disfigured princess”? Why not “a loving parent” or “a fashionable girl”, instead of “the most unkind person you ever met” and “total badass who doesn’t care about anything - other than how scary their facial difference is to these poor ableds”? Don’t endlessly associate us with brutality and suffering. We aren’t violent or manipulative or physically strong or brash or bloodthirsty by default. We can be soft, and frail and gentle and kind - and we can still be proud and unashamed.
Question five: why is your character just… fine with all this?
Can’t they make a community with other people with facial differences and do something about this? Demand the right to exist as disabled and not have to hide their literal face? Why are they cool with being dehumanized and treated with such hatred? Especially if they fall into the "not so soft and kind" category that I just talked about, it seems obvious to me that they would be incredibly and loudly pissed off about being discriminated against over and over... Why can't your character, who is a subject of disfiguremisia, realize that maybe it's disfiguremisia that's the problem, and try to fix it?
Question six: why is your character wearing a mask?
Usually, there's no reason. Most of the time the author hasn't considered that there even should be one, the character just wears a mask because that's what people with facial differences do in their mind. Most writers aren't interested in this kind of research or even considering it as a thing they should do. The community is unimportant to them, it's not like we are real people who read books. They think they understand, because to them it's not complex, it's not nuanced. It's ugly = bad. Why would you need a reason?
For cases where the reason is stated, I promise, I have heard of every single one. To quote, "to spare others from looking at them". I have read, "content warning: he has burn scars under the mask, he absolutely hates taking it off!", emphasis not mine. Because "he hates the way his skin looks", because "they care for their appearance a lot" (facial differences make you ugly, remember?). My favorite: "only has scars and the mask when he's a villain, not as a hero", just to subtly drive the point home. This isn't the extreme end of the spectrum. Now, imagine being a reader with a facial difference. This is your representation, sitting next to Freddy Krueger and Voldemort.
How do you feel?
[large text: F.A.Q. [frequently asked questions]]
As in, answers and “answers” to common arguments or concerns.
“Actually they want to hide their facial difference” - your character doesn’t have free will. You want them to hide it. Again; why.
“They are hiding it to be more inconspicuous!” - I get that there are elves in their world, but there’s no universe where wearing a mask with eye cutouts on the street is less noticeable than having a scar. Facial differences aren’t open wounds sprinkling with blood, in case that's not clear.
“It’s for other people's comfort” - why are other characters disfiguremisic to this extent? Are they forcing all minorities to stay hidden and out of sight too? That’s a horrible society to exist in.
“They are wearing it for Actual Practical Reason” - cool! I hope that this means you have other characters with facial differences that don’t wear it for any reason.
"It's the character's artistic expression" - I sure hope that there are abled characters with the same kind of expression then.
“They’re ashamed of their face” - and they never have any character development that would make that go away? That's just bad writing. Why are they ashamed in the first place? Why is shame the default stance to have about your own face in your story? I get that you think we should be ashamed and do these ridiculous things, but in real life we just live with it.
"Now that you say that it is kinda messed up but I'm too far into the story please help" - here you go.
“[some variation of My Character is evil so it's fine/a killer so it fits/just too disgusting to show their disability” - this is the one of the only cases where I’m fine with disability erasure, actually. Please don’t make them have a facial difference. This is the type of harm that real life activists spend years and decades undoing. Disfiguremisia from horror movies released in the 70s is still relevant. It still affects people today.
"But [in-universe explanation why disfiguremisia is cool and fine actually]" - this changes nothing.
[large text: Closing Remarks]
I hope that this post explains my thoughts on facial difference representation better. It's a complicated topic, I get it. I'm also aware that this post might come off as harsh (?) but disfiguremisia shouldn't be treated lightly, it shouldn't be a prop. It's real world discrimination with a big chunk of its origins coming out of popular media.
With the asks that have been sent regarding facial differences, I realized that I probably haven't explained what the actual problems are well enough. It's not about some technical definition, or about weird in-universe explanations. It's about categorizing us as some apparently fundamentally different entity that can't possibly be kind and happy, about disfiguremisia so ingrained into our culture that it's apparently impossible to make a world without it; discrimination so deep that it can't be excised, only worked around. But you can get rid of it. You can just not have it there in the first place. Disfiguremisia isn't a fundamental part of how the world works; getting rid of it won't cause it to collapse. Don't portray discrimination as an integral, unquestionable part of the world that has to stay no matter what; whether it's ableism, transphobia, or Islamophobia or anything else. A world without discrimination can exist. If you can't imagine a world without disfiguremisia in fiction... that's bad. Sad, mostly. To me, at least.
Remember, that your readers aren't going to look at Character with a Scar #14673 and think "now I'm going to research how real life people with facial differences live." They won't, there's no inclination for them to do so. If you don't give them a reason, they won't magically start thinking critically about facial differences and disfiguremisia. People like their biases and they like to think that they understand.
And, even if you're explaining it over and over ;-) (winky face) there will still be people who are going to be actively resistant to giving a shit. To try and get the ones who are capable of caring about us, you, as the author, need to first understand disfiguremisia, study Face Equality, think of me as a human being with human emotions who doesn't want to see people like me treated like garbage in every piece of media I look at. There's a place and time for that media, and if you don't actually understand disfiguremisia, you will only perpetuate it; not "subvert" it, not "comment" on it.
I hope this helps :-) (smile emoji. for good measure)
Mod Sasza
Since it's Autism Awareness Month, here's
[Large text: Why the puzzle piece is offensive to the Autistic Community]
Unfortunately, the most commonly used symbols to represent autism are all puzzle related, like the ones bellow.
These symbols and similar ones are typically used by Autism Organizations that are run by allistic people rather than autistic, Autism Speaks being the best-known example across the internet, but not the only one.
I'm not going to go deep into how bad Autism Speaks is, but just to leave you with the tip of the iceberg, know they used to put out ads that demonized autistic people (and even one in which one of the organization's leaders spoke about wanting to drive herself and her autistic daughter off a bridge).
Autism Speaks, and many others, attempt to "teach" people about autism, without hearing what actually autistic people have to say, and that's their biggest (but not at all only) problem.
Now, stay with me as we dive into history...
The puzzle piece was first used as a symbol for autism in 1963, by UK's National Autism Society, later on being adopted by Autism Speaks, which made it more popular.
Back then, autism awareness campaigns were viewed as being similar to, for example, cancer awareness ones, because autism was seen as an illness, a disease (which it is not).
As I've made clear before, the puzzle piece is heavily associated with organizations that spread misinformation about autism, making it, of course, already a bad symbol to represent us, but there's something I personally feel bothers us a lot more, and that is the symbolism of the puzzle piece.
The puzzle piece represents an idea of "mystery" and — you guessed it — being "puzzled".
And us, autists, don't really appreciate being called confusing.
Not only that, these words were often used to describe autism offensively in the past (and still are). And, on top of that, most times, when you find a puzzle supposed to represent autism, it is incomplete.
Isn't the message clear enough?
We're people, not puzzles that have to be worked out. We're not incomplete and we're not "puzzled".
So
[Large text: Which symbols can you use for autism awareness?]
The infinity rainbow symbol is common for all neurodivergent people, while the golden infinity is specific for ASD (Autism Spectrum Disorder, in case you didn't know the acronym).
The infinity symbol represents the complexity and vastness of neurodivergence and autism.
Autism is less about "severity" and more about different struggles in different topics and areas (though not a lot of people seem to understand that, unfortunately). After all, autism is a spectrum, not a scale.
And if you're interested in why golden is the color of choice for us, that'd be because the periodic symbol for gold is Au, which I think is very clever, haha.
Some people also like to use red or plain yellow, I don't know a lot about that, but I'd recommend you research it.
And since we're on the topic of color, just a warning: in the Autistic Community we kind of avoid using blue to represent us, especially because it is heavily associated with Autism Speaks' "Light It Up Blue" movement.
Blue is seen as a representation of feelings like sadness, as well as being commonly associated with boys (this is important because women and other AFAB are often misdiagnosed and underdiagnosed because many people still think autism is only found in boys, and because many traits are viewed as "normal behavior" in AFAB people).
This isn't to say you can't use blue in the title of your PowerPoint presentation about ASD, it's just a thing we try to avoid.
Well, that should be all.
I decided to make this post because I've seen many people post about which symbols to use for Autism Awareness Month, but no one explaining why.
Thought this could help some poor lost soul understand it, lol
Happy Autism Awareness Month, my beloved Yippies, and a thank you to everyone who stopped to read <3 (heart).
Now I'm gonna go clean my search history and my gallery, just reading "Autism Speaks" gives me the ick.
the statements "clothes don't have gender" and "clothes can and do invoke gender dysphoria and euphoria for many people" can and should coexist.
You gotta write for funsies sometimes. Everything doesn’t have to be groundbreaking. Like. Who cares if it’s a little silly it is made out of love
reblog if you’ve read fanfictions that are more professional, better written than some actual novels. I’m trying to see something
I feel like we often have our non-binarity overlooked if we don't actively try to present as the "opposite" of our agab.
Like, many binary people will accept that an amab enby who wears skirts and dresses and let's their hair grow long is, indeed, an enby. But if an afab does those same things, a lot of people look down on their identity because in their mind you can't be non-binary if you don't try to break gender norms.
This is just another way to try to push binaries onto us, which is the one thing we're trying to avoid; it's literally the name of our label!
❗️❗️ This is asked entirely in good faith. This post is intended to open dialogue and help with solidarity and understanding. ❗️❗️
I would like to hear specifically from nonbinary people how the system of exorsexism/enbyphobia uniquely targets and affects you. Things that you feel other demographics do not experience. Reblogs and replies are very encouraged! If you would prefer, you could dm or send an ask to be added anonymously by me.
This is in the spirit of wanting to understand. I am listening. I encourage all binary trans people to not speak on this topic and let nonbinary people do the talking here. Reblog the post to spread it, but please say nothing.
Any and all people who identify as nonbinary are encouraged to participate. This is not agab-locked. If you are agender, trans neutral/neutrois, genderfluid, bigender, trigender, multigender, xenogender, genderqueer, third gender, two spirit, or any other gender not wholey contained within the strict binary of "man" or "woman", this post is for you. Even if you have already posted on the trans fem or trans masc versions, if you are nonbinary, you are welcome here.
This is not bait to start a fight. I will block without hesitation anyone who is actively being a shithead on this post. I want to hear and uplift your voices by getting it directly from you.
Click this to access the trans fem and trans women version of this post.
Click this to access the trans masc and trans men version of this post.
Click this to access the intersex version of this post.
Unpopular opinion: don't hesitate in killing your characters.
Everyone speaks about how you shouldn't kill a character out of the blue, but why can't you? People die in real life too; there's no need for a bigger reason.
Just don't kill characters purely because you're tired of them — don't abuse your power as a writer.
[Large text: "Want to be part of a group blog on how to write neurodivergent characters?"]
I've found Tumblr blogs on writing physically disabled and POC characters, but nothing specifically for neurodivergence.
Maybe there is something I just haven't found yet, but even if so, I think the most resources the better.
So, hi! I'm Amethyst — amateur writer and neurodivergent, and now looking for people to help me out with this project.
I could try this on my own, but I would rather have other neurodivergents with me (especially with different conditions from mine)
Does anyone want to help me make a change?
(image description: five images of black capitalized text on gray background that reads: Alt Text Unavailable For This Image.)
imagine if your dash, your Twitter feed, your fb looked like this. imagine if someone shared a photo with the comment “omg so cool!” and the above was all you could see. now imagine this happened hundreds of times. imagine that this was your normal experience interacting online.
access is love!
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She/He/They | Just a neurodivergent enby with lots of thoughts and a passion for literature (don't be shy; ask me about it) [pfp ID: a pannel from the My Hero Academia manga, which shows the character Nana Shimura, a female hero with black hair, over a white background. She is drawn in shades of gray and is looking at her right hand, which is raised at chest-level. Her hair and cape flow with the wind. End ID], [banner ID: a shade of lilac purple. End ID]
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