I Recently Had To Do This And It Was Stressful Af!

I recently had to do this and it was stressful af!

You think prepping for first dates or job interviews is hard? Try prepping for an appointment with a new primary/GP when you have a chronic illness.

-symptoms (when they started, how long they last, how frequent they are, new symptoms since seeing old doctors, pictures with dates and short explanations)

-tests done already, test results, tests that need to be done regularly

-conditions that have been screened for, conditions that need to be regularly screened for, secondary conditions due to primary condition(s), how different conditions are managed

-an elevator speech practiced so that you can cover everything important in a short amount of time (especially difficult if new doctor hasn’t heard of condition)

Tags

chronic illness chronic pain spoonie

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I feel like this about the doctors responsible for caring for each party too. Managing your own care is exhausting af.

my body is a group project and no one is doing their part correctly

Tags

autism chronic fatigue chronic illness chronic pain disability disabled actually adhd generalized anxiety disorder spoonie myalgic encephalomyelitis keratoconus fibromyalgia chronic fatigue syndrome major depressive disorder sleep apnea me cfs panic disorder fibro cfs (chronic fatigue syndrome) small fiber neuropathy dysautomnia pcosproblems actually agoraphobic barely hanging on these days can i get a new body please

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back when the spotify wrapped playlist of 2018 came out, i was confused to find the mission impossible theme song at the top of my list. until i remembered. halloween 2018. i had work and my job required me to walk around a lot. i basically just took laps through a building filled with people. for hours. so i got this idea. i dressed up as a secret agent, a low key and professional costume. but i added a twist. i put the mission impossible song on repeat, set it to the lowest setting possible and put my phone in my pocket. and so the entire day i walked around, slowly driving people insane bc they kept hearing the faint music of mission impossible but when they tried to find the source i was already gone. i paused it whenever i paused walking so no one would figure out it was me. they even asked me if i’d heard it. i acted confused. it took them hours to figure out what the hell was going on and knowing i caused such chaos still fuels me to this very day

Tags

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I just want disabled people to know that they are allowed to take up space.

You are allowed to exist, to have needs, to have desires and to speak your truth, and you don’t owe anybody anything for the right to do that.

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