This Is So Important! I Genuinely Don't Know If I Can Ever Truly Forgive My Parents

This is so important! I genuinely don't know if I can ever truly forgive my parents

dear parents, if your child has "seemed fine this entire time" but is now seeking out diagnoses, mobility aids, medical help, more doctors, and is sharing their pain more. do not fucking shut them down? even if it ends up being nothing, showing them that support through all of that will seriously help them. if it ends up being something and you're a bitch to them, the joke will be on you and that strain on your relationship will never go away because. you didn't listen.

listen to kids. we tell you what we need, it's not that hard.

More Posts from Girlish-in-pain and Others

4 months ago

sweet femmes. femmes like sugar that melt under your touch. femmes with flesh to grope and squish and kiss and bite. femmes that wrap themselves in lace and ribbons like pretty presents. femmes that wear pink lipstick and leave kiss marks on your face. femmes that are soft like bunnies and cuddle all the time. femmes that smell like vanilla and marshmallows and sweet dreams. femmes who need hands on them at all times to feel good. femmes who whisper in your ear during functions and drag you home. femmes who wear lacy bras and tiny skirts and like parading in front of you. femmes who like being carried around, hands wrapped around your biceps. cute femmes. sweet femmes. just femmes.

1 year ago

Elaborate fantasies of owning a wheelchair save me.

Elaborate fantasies of owning a wheelchair?

Save me elaborate fantasies of owning a wheelchair.

1 year ago

I know this is for artists and writers, but it's also just really helpful if you're considering beginning to use a cane or researching which one to buy. It gives a really nice overview of the most common types of canes. I have used a cane for a little over 6 months now and I would have loved to see something like this, when I was trying to figure out which cane to buy and how to walk with it. I usually use the cane with my dominant hand and didn't even realise that I can obviously just switch hands so I have my dominant hand free for stuff😂 I ALSO HAD NO IDEA THAT YOU CAN BUY A TIP FOR ICE!?!?!! I'VE BEEN SLIPPING AND FALLING AROUND FOR MONTHS AND DIDN'T EVEN QUESTION IT😭😭

A general cane guide for writers and artists (from a cane user, writer, and artist!)

Disclaimer: Though I have been using a cane for 6 years, I am not a doctor, nor am I by any means an expert. This guide is true to my experience, but there are as many ways to use a cane as there are cane users!

This guide will not include: White canes for blindness, crutches, walkers, or wheelchairs as I have no personal experience with these.

This is meant to be a general guide to get you started and avoid some common mishaps/misconceptions in your writing, but you absolutely should continue to do your own research outside of this guide!

This is NOT a medical resource!!! And never tell a real person you think they're using a cane wrong!

[Image text] Arm bends a little. Cane height at hip joint. Many canes have adjustable height. Cane sits within the natural center of balance. Causes stress on: Triceps, upper back, wrist (pressure) fingers (grip). Helps with: Joints (lower back, hip, knee, ankle, foot), weakness, balance, pain.

The biggest recurring problem I've seen is using the cane on the wrong side. The cane goes on the opposite side of the pain! If your character has even-sided pain or needs it for balance/weakness, then use the cane in the non-dominant hand to keep the dominant hand free. Some cane users also switch sides to give their arm a rest!

A cane takes about 20% of your weight off the opposite leg. It should fit within your natural gait and become something of an extension of your body. If you need more weight off than 20%, then crutches, a walker, or a wheelchair is needed.

Putting more pressure on the cane, using it on the wrong side, or having it at the wrong height can make it less effective, and can cause long term damage to your body from improper pressure and posture. (Hugh Laurie genuinely hurt his body from years of using a cane wrong on House!)

(some people elect to use a cane wrong for their personal situation despite this, everyone is different!)

A General Cane Guide For Writers And Artists (from A Cane User, Writer, And Artist!)

(an animated GIF of a cane matching the natural walking gait. It turns red when pressure is placed on it.)

When going up and down stairs, there is an ideal standard: You want to use the handrail and the cane at the same time, or prioritize the handrail if it's only on one side. When going up stairs you lead with your good leg and follow with the cane and hurt leg together. When going down stairs you lead with the cane and the bad leg and follow with the good leg!

Realistically though, many people don't move out of the way for cane users to access the railing, many stairs don't have railings, and many are wet, rusty, or generally not ideal to grip.

In these cases, if you have a friend nearby, holding on to them is a good idea. Or, take it one step at a time carefully if you're alone.

Now we come to a very common mistake I see... Using fashion canes for medical use!

[Image text] 4 Major Handle Shapes (significant variation and uses). Tourist/Crook/Hook. Classic shape, fashion and medical, easy to hook on things (arm, door, chair, etc), generally solid wood (stronger, heavier). Offset. Newer design, not a fashion handle, only handle for quad-bases, generally better balance, usually aluminum (light + cheap), soft handle, adjustable (rattles/clicks when swinging). Derby/Fritz/Anatomical/Contour. Classic medical shape, many fashion variants, some fashion + medical, varies in many ways, sometimes contoured to hand, comes in foldable styles, many aluminum styles, many customizable styles. Knob/Decorative. Fashion exclusive, knob shape hurts the hand after prolonged pressure (especially with designs), tend to be heavy, "sword canes" have the same issues.

(These are 4 broad shapes, but there is INCREDIBLE variation in cane handles. Research heavily what will be best for your character's specific needs!)

The handle is the contact point for all the weight you're putting on your cane, and that pressure is being put onto your hand, wrist, and shoulder. So the shape is very important for long term use!

Knob handles (and very decorative handles) are not used for medical use for this reason. It adds extra stress to the body and can damage your hand to put constant pressure onto these painful shapes.

The weight of a cane is also incredibly important, as a heavier cane will cause wear on your body much faster. When you're using it all day, it gets heavy fast! If your character struggles with weakness, then they won't want a heavy cane if they can help it!

This is also part of why sword canes aren't usually very viable for medical use (along with them usually being knob handles) is that swords are extra weight!

However, a small knife or perhaps a retractable blade hidden within the base might be viable even for weak characters.

[Image text] 4 Major base shapes (significant variation and uses). Adjustable base. Aluminum, standard modern medical, adjustable height, rubber base, wears down over time. Tripod/ quad base. If you need extra balance. Terrain attachment (varies, this is for ice). Removable, helps stop slipping on ice/snow/sand/etc, some canes have a retractable tip for ice. Classic base. Non-adjustable, custom only, modern standard still has a rubber base.

Bases have a lot of variability as well, and the modern standard is generally adjustable bases. Adjustable canes are very handy if your character regularly changes shoe height, for instance (gotta keep the height at your hip!)

Canes help on most terrain with their standard base and structure. But for some terrain, you might want a different base, or to forego the cane entirely! This article covers it pretty well.

Many cane users decorate their canes! Stickers are incredibly common, and painting canes is relatively common as well! You'll also see people replacing the standard wrist strap with a personalized one, or even adding a small charm to the ring the strap connects to. (nothing too large, or it gets annoying as the cane is swinging around everywhere)

Two canes side by side. The one on the left is painted a light pink, and the one on the right is painted black with a fire/lava pattern.

(my canes, for reference)

If your character uses a cane full time, then they might also have multiple canes that look different aesthetically to match their outfits!

When it comes to practical things outside of the cane, you reasonably only have one hand available while it's being used. Many people will hook their cane onto their arm or let it dangle on the strap (if they have one) while using their cane arm, but it's often significantly less convenient than 2 hands. But, if you need 2 hands, then it's either setting the cane down or letting it hang!

For this reason, optimizing one handed use is ideal! Keeping bags/items on the side of your free hand helps keep your items accessible.

[Image text] Where to put your stuff. Purses/bags. A lot of size range, Can mess with balance, Zippers are too hard with one hand, Handheld means you have no hands, over the shoulder only. Fanny pack. Accessible with one hand, Limited space, Good for balance. Backpack. Very physically comfortable, evenly weighted, holds a lot (medicine, foldable cane, emergency supplies, etc) can't access without fully stopping and putting cane down/hooking it on arm/dangling on strap. Pockets. Can only use on free side, many outfits don't have good pockets.

When sitting, the cane either leans against a wall or table, goes under the chair, or hooks onto the back of the chair. (It often falls when hanging off of a chair, in my experience)

When getting up, the user will either use their cane to help them balance/support as they stand, or get up and then grab their cane. This depends on what it's being used for (balance vs pain when walking, for instance!)

That's everything I can think of for now. Thank you for reading my long-but-absolutely-not-comprehensive list of things to keep in mind when writing or drawing a cane user!

Happy disability pride month! Go forth and make more characters use canes!!!


Tags
7 months ago

❤️❤️

I Saw This Helpful Print Out At My Local Library Earlier, I Thought This Could Be Of Help To Someone.

i saw this helpful print out at my local library earlier, i thought this could be of help to someone. even if you don't inject, this advice could save a life. I'm here for all addicts and users, we care about you and love you. everyone deserves to be informed about their health regardless of what substances they use

4 years ago
It’s Easier To Think Of Someone As “lazy” Than To Face The Fact That School Costs Too Much, That
It’s Easier To Think Of Someone As “lazy” Than To Face The Fact That School Costs Too Much, That
It’s Easier To Think Of Someone As “lazy” Than To Face The Fact That School Costs Too Much, That
It’s Easier To Think Of Someone As “lazy” Than To Face The Fact That School Costs Too Much, That
It’s Easier To Think Of Someone As “lazy” Than To Face The Fact That School Costs Too Much, That
It’s Easier To Think Of Someone As “lazy” Than To Face The Fact That School Costs Too Much, That
It’s Easier To Think Of Someone As “lazy” Than To Face The Fact That School Costs Too Much, That
It’s Easier To Think Of Someone As “lazy” Than To Face The Fact That School Costs Too Much, That
It’s Easier To Think Of Someone As “lazy” Than To Face The Fact That School Costs Too Much, That
It’s Easier To Think Of Someone As “lazy” Than To Face The Fact That School Costs Too Much, That
It’s Easier To Think Of Someone As “lazy” Than To Face The Fact That School Costs Too Much, That
It’s Easier To Think Of Someone As “lazy” Than To Face The Fact That School Costs Too Much, That

It’s easier to think of someone as “lazy” than to face the fact that school costs too much, that better jobs are inaccessible, that childcare is unaffordable, that people are forced to work so hard for so little that there’s no way they could have enough energy to attempt schooling or finding better work, and that what we give to people who can’t work is insufficient to the point of being shameful. I could say that calling people lazy is, in itself, lazy, but it’s not just an intellectual shortcut. It’s a defense mechanism.

11 months ago

Seeking advice: new wheelchair user

I will be using a wheelchair semi-regularly the next month to see if it will help reduce pain flare-ups / baseline pain and to figure out if it's helpful for me.

Tomorrow is the first day and I am going to uni and therapy. I have only used a wheelchair a couple of times but I'm comfortable with folding it and such as my dad's disabled and it's his wheelchair I'm borrowing. In theory I know how to maneuver around but I'm nervous about it.

Do any wheelchair-users have tips/advice for new wheelchair-users?

Extra info: it's a foldable wheelchair, brand is Quickie. I'm nervous about tipping backwards (no anti-tip), going up and down curbs, taking the metro, painful hands/arms/shoulders.


Tags
3 years ago

Why Does Fibromyalgia Weaken the Immune System? - Southern Pain and Neurological

Why Does Fibromyalgia Weaken the Immune System? - Southern Pain and Neurological
Southern Pain and Neurological
Various reports have proven that fibromyalgia does indeed weaken our immune system and raise levels of white blood cells.

-

Firstly, studies have shown that fibromyalgia patients tend to have high counts of white blood cells and cytokines (immune cells), which is often observed when a patient is suffering from an infection. This in itself shows that this condition affects an individual’s immune system.

Similarly, further studies show that this disorder weakens our brain’s immune system. It does this by reducing the blood flow in the brain’s pain center, hence affecting the neuron receptors. This eventually leads to increased pain and stress levels and a weak immune system that is incapable of fighting off bacteria.

-

The Influence of Pro-inflammatory Cytokines and Genetic Variants in the Development of Fibromyalgia: A Traditional Review
cureus.com
Fibromyalgia is a complex syndrome characterized by widespread chronic pain, without any obvious etiology, and it is often accompanied by a

Cerebral Palsy also causes cytokine dysgregulation. Did you know that? I just learned. How am I not dead?

The association between proinflammatory cytokine polymorphisms and cerebral palsy in very preterm infants
sciencedirect.com
Cerebral palsy (CP) is a nonprogressive motor disorder caused by white matter damage in the developing brain and is often accompanied with c

https://onlinelibrary.wiley.com/doi/10.1111/dmcn.14724

11 months ago

disabled people are worth whatever cost or resources is needed to keep them alive. disabled people are worth it even if they don't live long. they're worth it even if they will need extra support and resources for every day of their life. they're worth it even if they spend all they life indoors. none of it is wasted. none of it is in vain. time, effort, money, resources spent on a life are not wasted. these things have served their purpose. the joy of someone's existence is not undermined by not lasting forever. there's no meaningful point, some threshold where you can say "okay this is enough. after that it's not worth it." it's always worth it.

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24, they/them, nonbinary lesbian, disabled. Studying medicine, working on my internalised ableism, prioritising finding out what I like to do. I write, ish, or try to at least and that's something

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