People Love To Talk About Whether Or Not Disabled People Can Work

On 12 March 1990, dozens of disabled people descended on the US Capitol and carried out a protest which became known as the Capitol Crawl. Participants were protesting against the stalling of a proposed law, the Americans with Disabilities Act (ADA), which would prohibit discrimination against disabled people. Around 1000 other protesters watched and cheered while dozens of members of ADAPT, a group campaigning for public transit access for disabled people, abandoned their wheelchairs and mobility aids and began crawling up the steps of the building housing Congress. It was a powerful illustration of the difficulties faced by many disabled people faced with a hostile environment which had been constructed without their needs in mind. Michael Winter, one of the participants later reflected: “Some people may have thought it was undignified for people in wheelchairs to crawl in that manner, but I felt that it was necessary to show the country what kinds of things people with disabilities have to face on a day-to-day basis. We had to be willing to fight for what we believed in.” In the wake of the protest, Congress passed the bill and it was signed into law in July 1990. https://www.facebook.com/workingclasshistory/photos/a.1819457841572691/2229212140597257/?type=3

This is probably still good OpSec, but mostly I need to reblog this to cite it for a paper.

So many people wouldn’t have asthma in the first place if it wasn’t for these corporations…Shifting blame from actual culprits to people with asthma (and people who can’t help but use plastic straws at that) is peak capitalism.

FYI to sick or disabled folks and those who assist or care for them:  Simplicity patterns has a new line of adaptive sewing patterns.  Designs include tops with port access, clothing with velcro closures, bags and cushions for mobility aids, bibs, chemo hats, and more.

I’m excited about these because they are the first patterns of this kind I’ve seen anywhere.  And Simplicity patterns are great for beginning sewists, with very clear step by step instructions and illustrations.

Patterns can be purchased here:  https://simplicity.com/simplicity/adaptive/

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Cosplayers, please don’t forget about those of us with disabilities at cons. Don’t push that walker or wheelchair out the way in artist’s alley because the owner of it isn’t touching it. Don’t give people funny looks for standing without their aids while they’re looking at things. Don’t get angry at the wheelchair user who has no choice but to go past your photographer because you’re taking up the entire space. Don’t kick out other cosplayers mobility aids. Keep space around you for disabled people, because we exist in your community and we just want to have fun like you do.

the worse climate disaster gets, the more you’ll see closet eugenicists start to advocate for letting people die. you need to be prepared to combat the ideology wherever you see it, because it’s only going to get worse and worse Read everything having to do with climate disaster critically. If the central argument underlying what’s being said is that the death of disabled and/or racialized people is inevitable, natural, or desirable– that’s a fascist.

they might be appear to be a garden variety republican or liberal or even a leftist at first, but know that if that argument is being made, their underlying ideology is one of supremacism, and given additional climate stress, they will become more blatant about it.

I realized the other day that the reason I didn't watch much TV as a teenager (and why I'm only now catching up on late aughts/early teens media that I missed), is because I literally didn't understand how to use our TV. My parents got a new system, and it had three remotes with a Venn diagram of functions. If someone left the TV on an unfamiliar mode, I didn't know how to get back to where I wanted to be, so I just stopped watching TV on my own altogether.

I explained all this to my therapist, because I didn't know if this was more related to my then-unnoticed autism, or to my relationship with my parents at the time (we had issues less/unrelated to neurodivergency). She told me something interesting.

In children's autism assessments, a common test is to give them a straightforward task that they cannot reasonably perform, like opening an overtight jar. The "real" test is to see, when they realize that they cannot do it on their own, if they approach a caregiver for help. Children that do not seek help are more likely to be autistic than those that do.

This aligns with the compulsory independence I've noticed to be common in autistic adults, particularly articulated by those with lower support needs and/or who were evaluated later in life. It just genuinely does not occur to us to ask for help, to the point that we abandon many tasks that we could easily perform with minor assistance. I had assumed it was due to a shared common social trauma (ie bad experiences with asking for help in the past), but the fact that this trait is a childhood test metric hints at something deeper.

My therapist told me that the extremely pathologizing main theory is that this has something to do with theory of mind, that is doesn't occur to us that other people may have skills that we do not. I can't speak for my early childhood self, or for all autistic people, but I don't buy this. Even if I'm aware that someone else has knowledge that I do not (as with my parents understanding of our TV), asking for help still doesn't present itself as an option. Why?

My best guess, using only myself as a model, is due to the static wall of a communication barrier. I struggle a lot to make myself understood, to articulate the thing in my brain well enough that it will appear identically (or at least close enough) in somebody else's brain. I need to be actively aware of myself and my audience. I need to know the correct words, the correct sentence structure, and a close-enough tone, cadence, and body language. I need draft scripts to react to possible responses, because if I get caught too off guard, I may need several minutes to construct an appropriate response. In simple day-to-day interactions, I can get by okay. In a few very specific situations, I can excel. When given the opportunity, I can write more clearly than I am ever capable of speaking.

When I'm in a situation where I need help, I don't have many of my components of communication. I don't always know what my audience knows. I don't have sufficient vocabulary to explain what I need. I don't know what information is relevant to convey, and the order in which I should convey it. I don't often understand the degree of help I need, so I can come across inappropriately urgent or overly relaxed. I have no ability to preplan scripts because I don't even know the basic plot of the situation.

I can stumble though with one or two deficiencies, but if I'm missing too much, me and the potential helper become mutually unintelligible. I have learned the limits of what I can expect from myself, and it is conceptualized as a real and physical barrier. I am not a runner, so running a 5k tomorrow does not present itself as an option to me. In the same way, if I have subconscious knowledge that an interaction is beyond my capability, it does not present itself as an option to me. It's the minimum communication requirements that prevent me from asking for help, not anything to do with the concept of help itself.

Maybe. This is the theory of one person. I'm curious if anyone else vibes with this at all.

A disabled woman fell on the bus I'm on and I'm literally the only one who listened to her and didn't try and pull her up when she said she wanted to sit for a second, or crowd her saying what she should do next.

Can we actually listen to disabled people maybe? This is exhausting.

happy disability pride month to those with conditions no one talks about, online or in general:

multiple sclerosis (me lol)

marfans

cerebral palsy

bells palsy

hidradenitis suppurativa

cauda equina syndrome

mixed connective tissue disorder

hyperadrenergic pots

non hypermobile eds types

stickler syndrome

mitochondrial disease

cystic fibrosis

sickle cell disease

myasthenia gravis

post-cholecystectomy syndrome

SWAN (syndromes without a name)

...just to name a few. i see you and you deserve awareness and understanding.

this list is non exhaustive, rb with other conditions you want to see represented!!

[ID: a post banner with dark red background and medium grey bolded text in the center. it reads “This post is about physical disabilities, do not derail.” On each side there is the dynamic disability icon, a gray symbol of person in manual wheelchair leaning forward with arms bent behind them mid-push. /end ID]

I want more people to be aware of disabled joy. The freedom of getting the right mobility aid. The sense of victory and accomplishment when doing a task you thought you would never succeed at. The smug superiority of zooming ahead of your walking friends on a downhill slope. The relief of a proper diagnosis answering your questions. The peace of learning how to radically accept yourself and your body. It ain’t all bad, folks.