LA JUSTICE
I made these as a way to compile all the geographical vocabulary that I thought was useful and interesting for writers. Some descriptors share categories, and some are simplified, but for the most part everything is in its proper place. Not all the words are as useable as others, and some might take tricky wording to pull off, but I hope these prove useful to all you writers out there!
(save the images to zoom in on the pics)
I was diagnosed with bipolar disorder at age 19 and had a psychotic episode at age 21, so I'd like to say I know a bit about what I'm talking about. And I'm a writer! So today, I'd like to provide some facts about bipolar as a jumping-off point for your research.
Things we'll discuss:
A note of caution
Types of bipolar disorder
Phases of bipolar
Warning signs of mania
Symptoms of mania
Symptoms of psychosis
How bipolar is treated
Common myths about bipolar
Characterizations to avoid regarding bipolar
How to create an authentic bipolar character
This is just my opinion as someone who has lived with bipolar for a long time. Everyone experiences bipolar a bit differently, so not everything I mention will apply to everyone, and my own story may not reflect every single bipolar person. With that disclaimer, let's go.
This is a guide to help people who want to write about bipolar. It should NOT be used for self-diagnosis or to diagnose anyone else.
If you think you have bipolar, you need to speak to a professional as soon as possible. Bipolar disorder is not a cute quirky accessory. Both mania and depression literally cause brain damage, as I've discussed in my post about the Myth of the Martyr-Artist.
This is not something to play around with or to use to build street cred or whatever. It is a serious, severe mental health condition that causes untold hardship for sufferers, including increased risk of suicide, homelessness, addiction, and even dementia.
So please don't read this and go "oh I probably have bipolar lol." If you do read through this and go "oh shit this sounds like me," then get thyself to a physician as soon as possible and go through a real, actual, professional screening.
Alright, anyway, let's get into it.
Bipolar is typically separated into two types. What kind you have depends on your predisposition to either extreme: mania or depression.
People with Bipolar 1 tend to have more severe manic episodes and less severe depressive episodes. They are more predisposed to experience psychotic episodes, though psychosis can happen in Bipolar 2 as well. Bipolar 1 patients may only have very brief depressive episodes or they may only experience their "baseline" and mania. (As an aside, I have Bipolar 1.)
People with Bipolar 2 lean more toward depressive episodes. They may experience hypomania, which is a less severe form of mania, but their primary symptom will be depression.
It's important to note that while many say Bipolar 1 is more severe because of the manic episodes and risk of psychosis, this does not discount the extreme suffering that can result from Bipolar 2. Patients with Bipolar 2 have just as many struggles as Bipolar 1 patients.
This works much the same as the typical depression that people with Major Depressive Disorder experience, but bipolar patients may be more agitated, self-destructive, and aggressive when depressed.
This is the "less severe" version of mania. In the chart above, it's demonstrated by DIG-FAST: distractibility, impulsivity, grandiosity, flight of ideas, activity increases, sleeplessness, and talkativeness. These happen in full mania too, but to a greater extent.
Many people with Bipolar 2 welcome hypomania because, well, it feels a lot better than the depression they are usually stuck with. However, it's important to note that hypomania, like mania, can cause brain damage. It's not something to screw around with.
A more severe, destructive version of hypomania: everything is dialed up to 11. People may become hypersexual, spend money they don't have, destroy relationships, make inappropriate comments at work, or even fly into destructive rages.
Mania can be terrifying, both for the sufferer and for those around them. You can be so extremely happy that it's almost painful, or so angry that you feel like you're going to tear your own skin off.
This typically is the "end result" of mania which happens to about 50% of people experiencing a manic episode. It is typified by delusions and hallucinations. We'll discuss these a bit more later.
Contrary to popular belief, psychotic hallucinations are typically auditory, not visual, though visual hallucinations can occur as well. Other strange and less common hallucinations include olfactory (smelling things that aren't there), gustatory (tasting things that aren't there), or sensory (feeling people touching you).
This is the normal, calm state in between depressive and manic episodes, where one has a sense of well-being and stability. It is the goal of therapy and medication management.
However, experiencing euthymia doesn't mean that the bipolar disorder is gone: it just means that it is in remission. Bipolar patients must always be on alert for warning signs of mania and be active participants in their own care.
Manic episodes often come with prodomes, symptoms that appear before full-blown mania.
Bipolar patients and their families should be on alert for these warning signs and, if they continue to occur for more than a week or so, schedule an appointment with the patient's psychiatrist to see if they need a higher medication dosage.
Here are some common signs that happen before full-blown mania:
Feeling either really great or really terrible for no reason. Sometimes you can feel really great and really terrible at the same time. It's a very weird feeling.
Functioning well on little sleep for days on end. Not just one sleepless night, but being able to go to work and function on like 4 hours of sleep night after night.
Increased or decreased appetite. Either you hate food or it's the most important thing in your life. Can fluctuate day by day.
Increased productivity. You're getting soooo much done and so quickly! (It probably sucks but we'll put that aside for now.) You just want to work on your passion projects constantly.
Sudden interest in multiple new hobbies all at once, and throwing yourself into them with such passion that it's scary.
Weird physical symptoms. You may find yourself locked into a position and not want to move, or your skin may feel odd, like it's too tight or prickly.
Sudden bouts of tinnitus. It sounds really weird, but it's been proven to be a sign of impending mania along with the skin symptoms I mentioned before.
Your eyes look different. Your pupils are always dilated.
Not everyone will get all of these, but most people will have at least one trigger that happens to them every time before a manic episode. For me, it was hypergraphia (because of course it was).
Not all of these symptoms will happen to everyone, and every manic episode can be a little different. It all really depends on who you are. Now, I must say that anyone, bipolar or not, can have these symptoms. It is the intensity of them that defines mania. A manic episode can ruin your life because you just get. so. extreme. about whatever it is.
Becoming extremely focused on random things and projects. For me, it was cleaning the house: I started throwing out old photos that I thought we didn't need because I didn't want any clutter. I would sweep the floor for hours at a time. Sudden and intense interest in random subjects. I got really obsessed with Neolithic Scotland of all things. Now I can't even remember half the shit I learned. Spending way too much money. Many people will go into extreme debt because of their mania, especially if they don't have family support. I spent like $300 on a kitchen knife set despite having a full set of perfectly serviceable kitchen knives. I also bought a professional-grate ukulele that I very much could not afford and very much did not need. Worsening of any addictions or developing new addictions. Especially seen in gambling addictions because, well, you already want to spend a lot of money and it's an extreme dopamine hit. Sudden and intense aggression or emotional volatility. Normally calm and relaxed people will go off the deep end about pretty much anything: screaming, throwing things, and then bursting into tears out of guilt. I'm normally a pretty chill person, but one time I threw a phone at my mom's head because she pissed me off so much. I can't even remember what she said to make me mad. Feeling invincible. Manic people are convinced that nothing bad could ever happen to them and they can do whatever they want. Think of someone running into traffic, sure that no one will hit them. Or, on the other hand, feeling terrified of everything. This can happen to the same person, sometimes simultaneously. You may believe everything is a threat, even when there is no clear and obvious threat. Being physically incapable of sleeping. It's not insomnia like normal people experience, where you pop a melatonin or do some breathing exercises and manage to fall asleep. You cannot fall asleep. Normal sleeping pills do not work. You may need heavy-duty tranquilizers. One time, I combined like five Benadryl and a whole bottle of whisky and STILL couldn't get to sleep. I was crying because of how tired I was. Talking extremely fast and in an extremely disconnected way. This is called flight of ideas; you start jumping from one discussion to another in ways that other people can't follow. Your brain has made that leap but can't articulate it for other people. Shiny eyes. You really can see mania in the eyes; it's very unsettling. Manic eyes look dark, wide, and shimmery. Hypersexuality. I did not have this problem, but I have talked to bipolar people who wrecked their marriages because they could not control their urges. That's not an excuse, of course, nor does it lessen the pain that the other person felt. But it can indeed happen. Unintentional pregnancies, STDs, and a whole lot of bad feelings can come from this. Kleptomania. I also did not experience this, but I have heard of other bipolar people who felt an uncontrollable urge to steal things they didn't even need to: they could afford it, they just wanted the thrill of stealing it.
Mania can cause amnesia afterward, and the person may not remember large swathes of what happened, or it will feel "dream-like" and confusing. Of course, they've got some major damage control to do that can plummet them into depression.
Again, just like with mania, not everyone will experience all of these. If a person has multiple psychotic episodes, each one may be a bit different every time.
I'm going to separate this into several sections: common delusions, common hallucinations, and Other symptoms (which are often not discussed as much).
Delusions can shift throughout the course of a psychotic episode, seamlessly morphing from one to another without clear cause.
With psychoanalysis, one can often find that there are "seeds" of a delusion in the person's everyday life, and they may be connected to current events. For example, someone may think they're the reincarnation of a previous president during a presidential election.
Being god or a reincarnation of a famous person
Extreme religiosity
A belief that they have found the "key" to the universe and that everything is connected by some vast conspiracy
Being surveilled by a government entity, sometimes with the belief that they have had tracking devices installed without their consent
Being stalked, harassed, or tormented by unknown entities or by strangers (gang-stalking)
Being persecuted for a certain identity
Having some special role to play or a special status
Being a member of a special community
Having special knowledge or insight into issues, like world affairs
Being ill with another disease, like cancer or dementia
Being ageless, immortal, or invincible
Having a special connection with a celebrity, famous person, fictional character, people you know, or even strangers
A sense that loved ones have been replaced with clones or copies
Believing that there is a secret "play" going on and other people are playing along with a secret "script"
Believing other people can hear your thoughts, or that you can hear theirs
Repeating noises, words, or phrases, often in distinct voices
Spectral, unhearable music
Environmental noises that don't exist, like train whistles or construction sounds
Repeating jingles or "ear-worms" that get stuck and may continue for days or weeks off and on
Humming, whirring, or ringing
Mutated or blurry faces, even of people you know well
A sense that a person's face is not their "real" face and they are wearing a mask
Haloes or auras around people or animals
Sparkles, flashes, and black spots
Colorful lights, ribbons, or strings
Seeing people you know who could not feasibly be there, like old coworkers, old partners, or deceased relatives
Vague blurry shapes, or distinct monster-like entities
Strangely shaped or mutated animals or people
"String people" or "stick people"
Black "void people"
Shadows that aren't there, typically around doors or windows
Skittering bugs, rodents, or snakes, often black or blurry
Bugs or small creatures crawling on the skin
Itchiness or grittiness on the skin
Light feathery touches along the skin, especially on the back or hands
Goosebumps with no clear cause that don't go away
Bad smells, like feces, garbage, body odor, or burning plastic
Good smells, often those from childhood
Losing sense of smell or taste
Sense that the mouth is full when nothing is there
Prickly tongue
Metallic taste (may be a medication side effect)
Muscle stiffness
Catatonia
Slurred or fast speech
Lack of appetite
Weight loss
Migraines
Parkinsonian symptoms (tremors)
Bipolar is treated in a few ways, with the most important and prominent being medication.
Bipolar is typically treated with mood stabilizers, which is a vague class that includes anticonvulsants, SSRIs, SNRIs, and other groups of medications. (The medication I use, Lamictal, is an anticonvulsant.)
Psychiatrists must be very careful when prescribing antidepressants for Bipolar I patients because too much can bring on mania. Bipolar 1 patients will often have an antipsychotic added to their regimen as well. There are new classes of drugs that combine antidepressants with antipsychotics for a one-and-done deal.
Bipolar patients may also have antianxiety medications added to their regimen.
Psychosis is a medical emergency and must be treated as soon as possible. Fast-acting antipsychotics can be injected in the emergency room to stablize a psychotic patient. They may also use tranquilizers to calm a paranoid or combative patient.
Like with schizophrenia, patients who are not medication-compliant may opt for a long-lasting antipsychotic injection that only needs to be done once a month or once every three months.
A history of trauma is one of the things that predisposes a person to bipolar disorder, so working on this can help reduce symptoms. EMDR therapy can be a safe and effective way to process trauma for bipolar patients.
However, Cognitive Behavioral Therapy (CBT) doesn't work very well for bipolar patients because, well, their cognitive distortions are brought about by chemical changes in the brain, not just seeing the world "wrong."
Dialectical Behavioral Therapy is a better choice for bipolar patients because it helps them become more aware of their thoughts and, therefore, better able to manage their emotions.
Other options include equine-assisted therapy (my favorite!), art therapy, and family therapy to help build a stronger support system.
All the stuff that helps "normal" people can help bipolar patients, too. For example, having a set routine, eating well, setting and keeping a bedtime, getting exercise, and eating well are all crucial for managing bipolar, in addition to medication and therapy.
Weight management is a critical component of bipolar treatment. A lot of antipsychotics and mood stabilizers can cause weight gain, even when someone isn't overeating; they can also cause cravings for sweet foods or an increased appetite.
Because bipolar is often comorbid with other conditions worsened by excess weight, such as diabetes, heart disease, and PCOS, care must be taken to keep one's weight down. Excercise, because it has neurogenic benefits, can be enormously helpful in helping to heal the brain.
Some medications also cause vitamin deficiencies because they affect the way that the body processes nutrients, and they may block absorption of certain nutrients. Multivitamins can counteract this and even reduce symptoms because some deficiencies have a marked impact on mood.
Bipolar people should not drink, as it reduces the efficacy of medications and can lead to nasty side effects. They also should NOT smoke weed, especially if they have a history of psychosis. Yes, marijuana-induced psychosis is very real and far more likely for a bipolar person.
Additionally, bipolar people should nurture their support system, as having family support is a key factor in whether a bipolar person can stay stable.
Bipolar people are dangerous. Not necessarily true, though common media depictions show this as if all bipolar people are roving murderers.
In fact, bipolar people are more likely to kill themselves than anyone else: it has the highest suicide rate of any psychiatric illness, about 20 to 30 times more than the general population.
Medication is a crutch and bipolar people can get better by themselves. Wrong. Just like someone doesn't magically get better from Type I Diabetes without treatment, bipolar people need medication.
Bipolar can be treated just with lifestyle changes. Again, just like someone with Type I diabetes, you can't just will the bipolar away. You need treatment. No amount of supplements or sunshine will fix it. It's a brain disorder.
Medication turns bipolar people into emotionless zombies. Incorrect, with a caveat. The wrong dosage or type of medication very much can make someone into a zombie; I've certainly felt that way before. However, the correct treatment allows bipolar people to thrive and stay stable for years to come.
A bipolar person can never become stable and will always have symptoms. Sorta not true. Bipolar comes with other issues, like executive dysfunction, that cannot always be managed or treated. BUT bipolar people very much can become stable and mostly asymptomatic with the right treatment.
Bipolar people are always having some sort of crisis. It can feel that way, but once a person is stable, they can look just like anyone else.
Bipolar can go away. No. Even if you are in remission, you still have bipolar disorder and can relapse at any time. It is a brain dysfunction that causes measurable structural differences in the brain which do not go away.
Once you snap out of psychosis/mania, you're right back to normal. Wrong. You don't just wake up and are not psychotic anymore. It takes time for your brain to equalize and come back to baseline. I remember it as feeling like I was rising out of a long, long sleep. Once someone is stable, it's like nothing ever happened. Mania or depression causes brain changes that can last years after the episode. On average, the brain damage from mania exists for up to seven years after the last episode, and it worsens with each subsequent episode.
Any fluctuation in mood is a symptom of bipolar. This is so, so, so annoying. Bipolar people are allowed to have bad days just like anyone else. If I'm having a shitty day but I'm not throwing phones at people, then I'm probably just having a bad day. If I'm really happy, it doesn't mean I'm manic.
Bipolar people can't help it and shouldn't be punished for their actions. No no no. What I like to say is that my bipolar doesn't excuse my behavior, but it does explain it. If you hurt someone while manic, you still hurt someone and it's still your fucking fault! Never use it as an excuse to be an asshole.
Everything about bipolar is terrible. Wrong! Bipolar can have benefits like creativity, empathy, good problem-solving, and a unique perspective on life. A stable bipolar person can be a delight to be around. But these don't discount the downsides and should not be a reason to refuse treatment.
Roving maniac. Kind of a duh. We have a bad enough rap anyway.
Evil murderer. Same as above.
Abusive evil spouse. I mean, yeah, a bipolar person can be abusive, but they're likely abusive because they're a shitty person and bipolar is just a side effect.
Manic pixie dream girl. Don't romanticize bipolar either.
Miserable cinnamon roll. We're people, okay? Complex, multifactorial, interesting people. We're not constantly miserable.
Total trainwreck. If you're going to show someone's nervous breakdown, please please please show them when they are stable too. Please don't just distil the bipolar person down to their symptoms. Show us as who we are: complex people just like you or anyone else.
Drama magnet. Frankly, a lot of bipolar people don't want to get involved in other people's shit. We've got our own stuff going on. We're not out to wreck your life, we're just trying to get through the day.
Do your research. Read a mixture of medical journals, stories from bipolar people, and good depictions of bipolar disorder in the media. Go beyond what I have discussed here and seek out good, peer-reviewed research.
Don't add bipolar just for shock value. Annoying and shitty. If you're thinking of making an evil cruel murdermonster, stop. We have it hard enough and you're going to make it worse.
Create the character first, then add the bipolar. Every bipolar person is different, just like every person is different. Get a feel for your character and then determine how they might act when manic or depressed.
Use an array of symptoms. Don't just go for "ooooh scary monster in the corner of my eye" because that's boring and overdone. Look through the list I provided and consider how you can fit a few of them in there.
Remember that it takes time to recover from an episode. You should not just have your character wake up one day and be cured. They will feel "off" for a while after an episode, like a very very long hangover.
Consider medication symptoms. Decide what medication they will use and then look up the symptoms. Demonstrate how this makes them feel and whether it makes them want to continue treatment.
Think about how a character feels about their bipolar. Some people don't think it's a problem because they like the energy, and others are terrified of relapsing. Some see it as a challenge to be overcome, and others find it to be a burden that they want to be rid of. And many will feel all of these at different times.
Show the impact on other characters. Remember that your other characters are seeing and reacting to this. They may be terrified, frustrated, hurt, dismissive, or not want to deal with it.
Demonstrate times of stability, too. Too many people use bipolar as an "ooooh soo sad" (especially psychosis) and don't show the character just being a normal human being.
Show the ableism bipolar people face. Yes, we do face ableism. People calling us crazy, denying us medical care, passing us up for jobs, or my very least favorite, "have you taken your meds today?" UGH SHUT UP YES I HAVE LEAVE ME ALONE.
Remember that many people are not medication compliant. Medication compliance is one of the number one indicators of whether a person will stay stable long term. If your character refuses to take their medication, then they are more likely to relapse.
People have many reasons for not accepting treatment: they don't like the way it feels, they're embarrassed, they don't see it as a problem, or they can't afford it (some of these meds can be hundreds of dollars a month even with insurance). So make sure to explain why they are medication non-compliant.
The posts I write can sometimes take me hours - they're always intricate, always thoughtful. This one took me about three hours to complete.
I do this as a labor of love for the writing community, sharing what I have learned from almost 15 years of creative writing.
However, if you'd like to support me, maybe you'll consider buying my book for $1.99?
9 Years Yearning is a gay coming-of-age romance set in a fantasy world. It follows Uileac Korviridi, a young soldier training at the War Academy. His primary motivations are honoring the memory of his late parents, protecting his little sister Cerie, and becoming a top-notch soldier.
However, there's a problem: Orrinir Relickim, a rough and tough fellow pupil who just can't seem to leave Uileac alone.
The book features poetry, descriptions of a beautiful country inspired by Mongolia, and a whole lot of tsundere vibes.
Oh, and horse!!! Horse love!! SO MUCH HORSE LOVE.
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Reviews are vital for visibility on Amazon and help to support indie authors like me. Whenever you love a book, be sure to let the author know! It's much appreciated.
A arte imita a vida
So, I've been writing a blind character who cooks. So far, I've written him as being someone who relies a lot on routine and habit, who navigates the kitchen by touch and by memory. He's a bit rigid, and insists on using his own tools, which are color coded (he can see them up close with what residual vision he has) and marked with braille, but I was wondering what other tools a blind person might use when cooking.
I don’t know where and when your story takes place, so what is used might change depending on the character. Here are some options to get you started. There are many tools and techniques devoted to making cooking easier. I don’t know as much about the subject, so I’ll do my best. Please add any other ideas in the notes.
First, the creator @canseecantsee on YouTube and TikTok is an excellent resource. She has lots of videos showcasing how she cooks and does various daily tasks. She demonstrates the use of many tools, such as heat resistant gloves and high contrast items. Here is a video in which she demonstrates chopping vegetables.
Notice the high contrast items such as the yellow chopping board and purple knife. In the video, she demonstrates use of the towel or a place mat beneath the cutting board to prevent slipping. As she cuts a cucumber, tomatoes, and onions, she also uses a technique that allows her to feel the edge of the item so that she knows where she wants to cut and how thick the slices will be.
Here is a video by TheBlindLife showcasing his accessible kitchen. He has excellent points on the importance of contrast, from color contrast to shape contrast. The video includes
bump dots
labels
high contrast colors of tools
high contrast plates and bowls
talking scale and thermometer
heat resistant gloves
and alternatives for glass cups
High contrast is important and can be created by being mindful of the kind of countertops or tables used. For example, in the video, there is a triangular plate that is decorated like a pizza slice. Eating on this plate might cause food to get lost visually, especially food that has the same colors as the plate. Much like the plate, counters or tablecloths with busy patterns might cause items to be harder to see due to lack of contrast. Plain counters, tables, or tablecloths make items stand out more.
Additionally, creating contrast between surfaces and the items on them is helpful. The table is a dark wood? Light plates, bowls, and cups it is. The counter is plain white? The plates and bowls are a dark color.
For glass cups, the video offers solid, colorful plastic cups that offer better contrast. The fact that glasses are clear makes them even more of a challenge and colorful plastic alleviates that concern. However, if someone wants to use glass cups, they can use some that are either made with colorful glass or have color somewhere on them. This might help depending on the contrast and lighting.
In addition to memory, your character can also use labels and various markers. Sharpie, different colors and shapes, textural elements like bump dots, actual Braille or large print labels, tape, stickers, string, or ribbon. Label makers are great, but plenty of other options exist, particularly considering the aesthetic the kitchen has. He may also enjoy decorating this way since he has residual vision. Ribbons tied around containers of sugar, salt, and flour can be cute and functional.
A few other ideas after searching cooking stuff:
talking items, such as a blender, rice cooker, or microwave oven
marking speed on electric mixers or other devices
talking, high contrast, or large print timers
funnel or liquid level indicator
Braille or large print labeled measuring cups
individual bowls for portions, such as soup, rice, sauces, proteins, etc. Different shapes, sizes, or color could also indicate what food item typically goes in what bowl.
You can also come up with other ideas by thinking about what your character would use and how that might be done more easily. While I prefer characters use blindness techniques and assistive devices, people also naturally make things easier for themselves through organization and creating their own labels. A person who cooks might also be able to distinguish certain ingredients by smell or texture.
Another tip I have is to watch blind content creators on social media. Chances are, some of them show themselves cooking or discuss how they do it.
Lighting is also going to be a big deal. The kitchen will need good lighting, both overhead and under cabinets. Natural lighting is also great, although this is not as reliable or constant.
What he uses might also depend on various factors such as income; how often a character cooks; amount of available space; time period and setting; cultural practices around cooking, eating, and utensils used; access to the blind community; willingness to use assistive devices for blind people; any internalized ableism or ableism from family; and level of vision.
Hope that helps.
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they're meant to die by each other's sword why are they in a coffee shop
Time for another one of these I have decided! As always, this is based on personal experience with blind low vision people, classwork, and research. I do wear glasses, but I am not blind/low vision and this is not my lived experience. Please feel free to question, correct, and comment, as long as you are respectful! Thanks so much for reading :) On to the good stuff!
Blind describes a person who has very little to no vision. This can be written with a lowercase or capital b (blind or Blind). Blind does not always mean no vision. It is medically defined as having vision of less than 20/200 in the better eye. Someone can be able to distinguish color, light and dark, or shapes, and still be blind.
blind refers to the medical condition of having little to no vision.
Blind (note the capital b) refers to the sociocultural experience of being a nonseeing person in a predominantly vision-based society. This distinction is newer and less common than with the Deaf community, but is becoming more popular, particularly with DeafBlind people. As always, the important thing is respecting what people identify as and want to be called
Visually impaired is a term that covers the spectrum of vision differences.
The term does not include disorders that affect one or more of the “basic psychological processes.” What this means is that though vision or the use of visual information may be impaired, if the nature of that impairment is not related to the structure of the eye, it would not be described as “visual impairment.” Examples include perceptual disabilities, brain injuries, or dyslexia.
B/VI is an acronym, standing for Blind/Visually Impaired, that can be used to refer to the community as a whole.
Low vision describes a person who is not fully blind, but whose level of vision is significantly impaired. More technically, this refers to vision that cannot be corrected through medical or surgical procedures, or conventional eyeglasses.
Legally blind (in the USA) refers to an individual whose vision is affected beyond what glasses can correct. This is a bit difficult to describe in writing but: If the strongest prescription possible cannot bring that person’s vision up to 20/20, they are legally blind. This is not the same as having no vision.
Deafblind or DeafBlind refers to an individual with any combination of vision and Deaf gain/hearing loss, ranging from mild to profound Deaf gain/hearing loss and from low vision to total blindness.
Visual acuity refers to clarity of vision and is the source of numbers like 20/20, 20/30, etc. This is another one that’s weird to describe so stick with me. My vision is about 20/40 (last I went to the eye doctor lol) which means that I see at 20 feet what someone with 20/20 vision sees at 20 feet. The top number is always 20, and refers to the 20/20 standard, while the lower number describes the visual acuity of the person in question. If their visual acuity is 20/10, that means they see at ten feet what a person with 20/20 vision would see at 20 feet. If they see at 20 feet what a person with 20/20 vision would see at 200 feet, they are medically considered blind.
Visual functioning is (basically) a measure of how well a person can use visual information in completing tasks. This is assessed a number of different ways.
Residual vision is another way of referring to the functional vision of a person with low vision or blindness.
I’m not going to go through all the different kinds of blindness and eye conditions, because that would take too long, and this is already a pretty long vocab section. But there are lots of different kinds of conditions and disabilities affecting eyes and vision! Please explore them :)
Is there Blind culture in the same way that there is Deaf culture? Difficult to say. It’s an ongoing debate, and I’m going to briefly address each side, and then leave it up to you to research further how this might affect your character and your story.
Historically, the blind community have rejected the idea that blind individuals have a shared culture. The reasons for this are very well outlined in this letter, which I highly recommend reading. To summarize it here: Blind people are not isolated from sighted people in the same way that Deaf people have been historically isolated from hearing people. The reason for this is generally acknowledged to be the lack of, or existence of, a language barrier. Blind people use the same language as the sighted people around them, while Deaf people have used signed language as opposed to spoken language. Where no language barrier exists, this position argues, no separate culture forms or needs to form.
On the other hand - there are certainly experiences that are shared by people across the visually impaired spectrum that fully sighted people do not have. Blind or low vision people access and interpret the world in different ways. There is, analogous to Deaf communities, a history of blind or low vision children being educated separately from sighted children, and of discrimination throughout the lifespan that has isolated visually impaired people from sighted society.
What does all of this mean? It means that there is less consensus about what it means to be visually impaired, and what values or traditions unite that experience. It means that there is less of a framework for how your visually impaired character might relate to other visually impaired characters or their broader community. I highly encourage further exploration within your own story, as well as making sure that whatever choices you’re making about the character’s relationship to their vision is grounded in conscious choice and research. Just because there are no easy answers about a collective blind culture does not mean that a blind character can be written the same as a sighted character but without the vision.
Assistive technology (as a reminder, this is not specific to visual impairments) refers to pretty much anything used to make the lives of disabled people easier.
Official American government definition is: “Any item, piece of equipment or product system, whether acquired commercially off the shelf, modified, or customized, that is used to increase, maintain, or improve the functional capabilities of children with disabilities. The term does not include a medical device that is surgically implanted, or the replacement of such device.”
Braille is a tactile system of writing in which raised dots represent letters, numbers, and punctuation. More on this later.
A screen reader is a software program that either reads written text on a screen aloud, or produces a Braille display.
Speech-to-text programs are software programs that…convert speech to text.
Text-to-speech or TTS are programs that convert written text into spoken speech. These were also commonly used on landline phones by d/Deaf people before text messaging became commonplace.
Seeing Eye dogs are service dogs that are trained to help their blind owners move and navigate independently.
White canes are white canes with a red stripe. These are both navigational tools for B/VI people, and used to communicate to others that the person carrying it is B/VI. Accordingly, it is illegal in some US states to carry a white cane if you are not visually impaired. Only 2-8% of B/VI people actually use them, though, and it requires dedicated practice to use them effectively. They are designed to vibrate differently when they come in contact with different types of surfaces, and proper practice can help cane users distinguish between different obstacles.
Braille, as mentioned before, is a tactile way of writing, which helps B/VI people read and write effectively. I’m not going to do an exhaustive explanation, but essentially, a different combination of raised dots represents each letter of the written alphabet. The sentence I’m writing, rewritten in Braille, would have the exact same words and structure, but would be expressed in raised dots. There are abbreviated forms that are less commonly used and may be used by more skilled readers or those reading texts with specialized, space-saving abbreviations.
Less than 10 percent of legally blind in the US can read Braille, and only 10 percent of legally blind children are currently learning it. This is a huge problem. Over 70% of blind adults are unemployed, and up to 50% of blind students drop out of high school. There is a strong, scientifically supported link between literacy and employment.
Technology should supplement literacy, not replace it. Screen readers and text-to-speech are great tools, but are not an adequate replacement for literacy.
Reading English text is not always the best possible method of reading. The misguided belief that reading Braille is isolating and stigmatizing leads many to push reading text over reading Braille, even when this is inappropriate or even impossible. Some children achieve higher levels of literacy through reading Braille.
Implications for your writing: Can your character read Braille? Why, or why not? What impact does their illiteracy have on their life?
I’ve tried a couple different headings here cuz as always, don’t want to tell people unequivocally not to write things. But these are things you should really think hard about before you include them in your writing.
So, things to rethink:
Overused tropes for B/VI characters:
Blind seer/blind mystic
Innocent, pure, noble, sweet etc.
Bumbling oaf B/VI person
Feeling people’s faces as a way to “know what they look like”
Does not happen in real life, more of a stereotype/sighted person’s fantasy
“Helen Keller didn’t exist” TikTok conspiracy theory (not a writing thing but a pet peeve I can’t not mention)
This is ableist. The only reason people think she wasn’t able to accomplish things is because she was deafblind and that’s fucking bullshit. It is not a cute silly TikTok joke. It’s ableism, and it’s disgusting.
Blindness negating power/ability.
This can be anything from an actual superpower (X-Men) to a technological advance (Star Trek) to a supernatural ability (Avatar: The Last Airbender.)
In real life, this could be having someone with other senses that compensate to an unrealistic degree, or echolocation, which, while it proves successful for some people, is hard, takes a ton of effort, and doesn’t work for everyone.
Please add recommendations in reblogs and comments! I really haven’t watched a lot of TV or movies that have blind characters, which sucks :/
Haben: The Deafblind Woman Who Conquered Harvard Law By Haben Girma is an autobiography of a deafblind woman that is incredibly well written and discusses independence and activism.
The World I Live In by Helen Keller describes life as a deafblind individual and is really powerful and beautiful.