The Autistic Mood Of Knowing You Should Ask Questions Back To People But Only Remembering Hours/days

The beginner autistic guide to common terms in our community (with extra context!).

*Disclaimer, I’m not a professional. This is just knowledge from my experience as an autistic person. Please feel free to correct anything :)

These definitions will include some of my own opinions and thoughts, especially on the more controversial terms. This is simply to help better prepare new autistic community members for conversations they become engaged in. Having all the perspective and context you can have can be very helpful when moving into new social spaces.

Autism (Or Autistic Spectrum Disorder, ASD): A neurodevelopmental disorder that is present from very early childhood. It’s mostly recognised through difficulties with social interaction and restricted and/or repetitive behaviours. The way it is referred to as “Autism Spectrum Disorder” is specifically referring to the fact that autism presents in countless ways. There are common traits and patterns, but the severity and complexity of those traits and symptoms is infinite.

NOTE: This does not mean that ‘everyone is a little bit autistic’. You are either autistic or you are not. It just means that if you have autism, it may present very differently to other autistic people you know.

Asperger’s Syndrome: Asperger’s syndrome is usually considered an older term for a ‘subtype’ of autism. The term is considered outdated by the DSM-5 and no longer used in that document. However it is still used in a lot of other countries. Now it is becoming more socially known that ‘Asperger’s syndrome’ is just a specific presentation of autism. Many autistics don’t like the use of the word ‘Asperger’s’ because of a couple reasons:

The term has a long history with NAZI’s and eugenics.

The term seems to basically mean ‘high functioning’ autistic, which simplifies the condition.

Asperger’s Syndrome is defined in a very similar way to autism, however people with “Asperger’s’ may be described as ‘gifted’ or ‘intellectual’.

It’s important to note that many people still identify themselves with the term ‘Asperger’s’. While it is good to be educated and up to date with terminology, some people have identified with this term their whole life and it’s not wrong to use the term for one-self. But either way, I do encourage you to do more research if you are comfortable.

Neurotype: Can be basically defined as the type of brain function one has. Some people consider autism a neurotype, and then neurotypical as another neurotype. However, many people claim that autism is ‘just another neurotype’. This is a harmful way of thinking about autism because autism is a disability. Labelling it as a ‘neurotype’ belittles all the struggles autistic people have that make them disabled. Autism is a spectrum and so some autistic people may not really consider themselves disabled, but many do.

Neurotypical (NT): A non-autistic person with no other mental conditions.

Allistic: A non-autistic person who can still have other mental conditions, such as depression or ADHD.

Neurodivergent (ND): Traditionally ‘Neurodivergent’ has been used to mean either autistic or ADHD. However in some contexts it is used to mean someone with any mental condition, including personality disorders or mental illnesses such as depression and anxiety.

Neurodiversity: a term used to describe the fact that there are many neurotypes in the world. It is used to imply that differences in brain development and function should be accepted as relatively normal. I think this is a good sentiment, but that some neurotypes should still be considered disabilities as well as a neurotype, so as not to diminish the struggles specific neurotypes go through.

High functioning/Low functioning: The labels of functioning are terms used to describe how independent an autistic (or other kind of disabled) person is able to be. Many autistics do NOT like the use of these terms for a couple reasons:

It tends to focus on the way an autistics disability affects the allistic people around them.

It simplifies the experience of the individual with autism to how independent they are, and is also not very descriptive for anyone trying to help the said autistic person.

High needs/Low needs: These are labels used to describe how much assistance an autistic (or other kind of disabled) person may need. It is slightly preferred by autistic people as the language is more centred to what the autistic person needs, rather than how independent they can be.

NOTE, many autistic people would argue that these terms are basically the same as high functioning and low functioning. I personally consider it to be best to just state someones highest needs or difficulties. For example “Olivia is nonverbal and highly sensitive to light and noise.”.

Masking: Masking is the act of hiding ones autistic traits to appear to be neurotypical. Masking is often a survival strategy developed by autistics to evade bullying or isolation. Masking can include suppressing the urge to stim, forcing oneself to make eye contact, learning how to ‘properly’ execute facial expressions, studying body language, etc. Masking can be an extremely vital skill for autistic people, but when an autistic person has to mask for long periods of time it can lead to negative consequences such as burn out or meltdowns. Masking can also be used in the context of other disabilities, such as ADHD.

Scripting: Scripting is a form of masking, when an autistic person pre-plans or practices responses or entire conversations. You may have a script you unconsciously follow for questions like “how are you?” Or “how is work?”, etc. It may be inspired from TV shows, movies or observing other people interact.

Burn out: Burn out is when an autistic person reaches their limit and has decreased energy for an extended period of time. Burn out may last anywhere between a couple days or a few years. Burn out is often caused by excessive masking, but can also be caused by repeated rejection, bullying or other mental conditions. Burn out is not the same as depression, but it can co-exist with depression.

Meltdown: A meltdown is when an autistic person experiences what might look like a ‘tantrum’. The person may be very angry, yelling, punching or hitting things (or themselves). They may be aggressively stimming or humming to themselves. A meltdown, internally, feels as if you are completely filled with negative energy, as if you might burst. It can feel like extreme irritation, or anger, or shame. Meltdowns can be caused by any number of stressful situations. For an autistic person this can be having a lot of social events, their routine being disrupted, having to eat foods they don’t like, being overstimulated, or even just negative social interactions.

Shutdown: A shutdown is very similar to a meltdown, in how it can be caused. For me personally, I tend to have a shutdown if I am not in a safe place to have a meltdown. From the outside it looks very similar to dissociation, and it can co-exist with dissociation. It typically feels like you are shutting down, turning off. You emotions were about to burst and then you just went numb. You may be unable to move, or go non-verbal. You may be crying quietly or you may simply just very suddenly feel the need to go home.

NOTE: Meltdowns and shutdowns can appear to feel like a panic attack, but they are different. Panic attacks come from intense feelings of dread or doom. Meltdowns and shutdowns come from repeated, or intense, stressful situations for an autistic.

Hypersensitive: Hypersensitivity is when the brain processes sensory input (such as touch, taste and smell) as much more intense than a neurotypical person would. This can mean that a slight cold breeze may feel painfully cold. Or looking outside a window can hurt ones eyes because it feels too bright. Or having to wear specific textures to stay calm.

Hyposensitive: Hyposensitivity is the opposite of hypersensitivity. It is when your brain inteprets sensory input as much less intense than a neurotypical would. Ways this can present in an autistic person include not realising when they hurt themselves, having a high pain tolerance, being unaware of temperature changes, etc. You may also not recognise your bodies hunger cues, dehydration or need for sleep.

NOTE: An autistic person can experience both hypersensitivity and hyposensitivity. It can also fluctuate day-to-day.

Sensory Processing Disorder (SPD): SPD is basically the term for experiencing lots of variation in your sensory input. It is similar to Auditory processing disorder. Which is where your hearing is technically fine (you aren’t any form of deaf), but you have trouble distinguishing what specific sounds are, or listening to one, important sound, in an area with lots of different noises (for example, being unable to understand what someone is saying next to you, because the TV is on.)

Overstimulation: This is when an autistic person has been experiencing too many different sensations at once, or for an extended period of time. This may be caused by too many noises happening at once. Or even just one annoying sound repeating for a long time. It can also be triggered by touch, taste, sight and smell.

Executive function/dysfunction: Executive function is the term used to describe how the brain initiates tasks. For neurodivergent folk, our executive function is often dysfunctional. This means we can often find it difficult to start new tasks. A way you may experience it is when you are sitting down, you may be screaming internally that you need to go and get some food, but your body seems unwilling to co-operate. Having executive dysfunction does not mean you are lazy, or do not want to do the task, it means you may be unable  to do the task.

Autistic intertia: Autistic inertia is related to executive dysfunction, because it is a term that helps describe how autistic people struggle to switch or initiate tasks. “ An autistic at rest remains at rest, and an autistic in motion remains in motion”.

Special interest/Hyperfixation: A special interest is a extremely long term interest/obsession with a particular topic. An example might be being really into pokemon. Learning all the different types of pokemon, playing all the games and collecting heaps of merch. A hyperfixation is a more short-lived interest that can be destructive in it’s severity (for example, it might get so extreme that it’s the only thing you can think about, to the point where you neglect your needs). Special interests are less likely to be destructive. But hyperfixations can be healthy and normal too.

Stimming: Stimming or self stimulation is the act of doing repetitive movements to help self regulate. Stimming can look like spinning, chewing, flapping hands, dancing, foot tapping, pen clicking, touch soft fabrics, using weighted blankets, lighting candles, eating crunchy snacks, etc. All of these forms of movement or repetitive sensory input can help us regulate our emotions better, prevent a meltdown or shutdown, or focus on a task easier.

NOTE: Echolalia is another term you may hear. It is a form of stimming in which an autistic person repeats sounds/phrases over and over.

ADHD: Attention-deficit/hyperactivity disorder is a neurodevelopmental disorder like autism, but it affects the brain in different ways. It often presents as having difficulties with paying attention, regulating emotions and hyperactivity (or, alternatively, it can present as being inattentive).

Savant or Savant syndrome: A condition when someone with some type of significant mental disability is an expert/’savant’ in a particular field, to the point of surpassing neurotypical experts. An example might be having photographic memory, or being able to learn languages extremely easily, or being an extraordinary mathematician. Autistic people often don’t like to hear the term ‘savant’ as we are often only valued by ‘society’ if we are savants. And if we are not, then we are often treated as lesser. This is kind of a form of eugenics.

Eugenics: Eugenics is a philosophy or belief that we can selectively breed humans to ‘improve’ humanity. Or create the ‘perfect race’. This was an idealogy practiced by Adolf Hitler during WWII, which lead to the holocaust. Eugenics is often a subtly underlying philosophy behind many statements that, on face value, seem relatively harmless. For example - “autism is the next step in evolution” is currently a popular statement. However, this implies that every other neurotype is not an improvement, which therefore implies that being autistic is superior. This would be considered a form of eugenics. Eugenics is considered a horrible philosophy because it encourages people to look down on others and dehumanise anyone not like themselves.

Co-morbidity: A co-morbidity is the term used for a condition that is regularly seen in conjunction with another condition. For example, autism and ADHD are often seen together. However, it can also be used to simply describe someone who has more than one condition (physical or mental).

AuDHDer: Someone with autism and ADHD. Just a shortened way to refer to people with both disabilities.

Selective mutism/Situational mutism: When an autistic person (or other neurotype) experiences periods of being unable to speak or communicate. This can often occur in stressful situations, like before tests or during doctors appointments. It is officially referred to as ‘selective mutism’ but many are trying to change it to ‘situational mutism’ as the individual does not willingly choose when they go non-verbal.

Alexithymia: Alexithymia is typically described as the inability to define and/or describe ones emotions. So you may often feel a type of discomfort, but not be able to label what it is. Not being able to distinguish between anger and irritability. Or not knowing if you feel sad or confused. It can make seeking professional help for many conditions really difficult, as you are unable to put your experience into words. It can also be similar to hyposensitivity in the way that it makes it difficult to understand what you body is feeling.

Dyspraxia: Dyspraxia is a disorder that affects co-ordination, movement and balance. It can make things such as sports, driving, cooking and writing difficult. It is fairly common in autistic people.

Prosopagnosia: The inability to recognise/remember faces. It is more common in autistic people.

Synesthesia: Synesthesia is when one form of sensory input is sometimes also experienced as another. For example, someone with this condition may see colours when they hear someones name. They may hear a song and get a taste in their mouth. This is also more common in autistic people.

FINAL NOTE: Autism is a spectrum and you may not experience all of these different terms, or you may not experience them in the way I described them. That does not mean you aren’t autistic. This is not a diagnostic tool. This is simply a guide to learning the terms you may often hear when discussing autism.

Back from the dead to reblog my own year-old post.

Wanted to add that if you're autistic and want to reclaim the puzzle piece, that's perfectly fine! But it's good we advise people to stay away from websites and organizations that use it since most of them are still ableist.

Since it's Autism Awareness Month, here's

Why the puzzle piece is offensive to the Autistic Community

[Large text: Why the puzzle piece is offensive to the Autistic Community]

Unfortunately, the most commonly used symbols to represent autism are all puzzle related, like the ones bellow.

These symbols and similar ones are typically used by Autism Organizations that are run by allistic people rather than autistic, Autism Speaks being the best-known example across the internet, but not the only one.

I'm not going to go deep into how bad Autism Speaks is, but just to leave you with the tip of the iceberg, know they used to put out ads that demonized autistic people (and even one in which one of the organization's leaders spoke about wanting to drive herself and her autistic daughter off a bridge).

Autism Speaks, and many others, attempt to "teach" people about autism, without hearing what actually autistic people have to say, and that's their biggest (but not at all only) problem.

Now, stay with me as we dive into history...

The puzzle piece was first used as a symbol for autism in 1963, by UK's National Autism Society, later on being adopted by Autism Speaks, which made it more popular.

Back then, autism awareness campaigns were viewed as being similar to, for example, cancer awareness ones, because autism was seen as an illness, a disease (which it is not).

As I've made clear before, the puzzle piece is heavily associated with organizations that spread misinformation about autism, making it, of course, already a bad symbol to represent us, but there's something I personally feel bothers us a lot more, and that is the symbolism of the puzzle piece.

The puzzle piece represents an idea of "mystery" and — you guessed it — being "puzzled".

And us, autists, don't really appreciate being called confusing.

Not only that, these words were often used to describe autism offensively in the past (and still are). And, on top of that, most times, when you find a puzzle supposed to represent autism, it is incomplete.

Isn't the message clear enough?

We're people, not puzzles that have to be worked out. We're not incomplete and we're not "puzzled".

So

Which symbols can you use for autism awareness?

[Large text: Which symbols can you use for autism awareness?]

The infinity rainbow symbol is common for all neurodivergent people, while the golden infinity is specific for ASD (Autism Spectrum Disorder, in case you didn't know the acronym).

The infinity symbol represents the complexity and vastness of neurodivergence and autism.

Autism is less about "severity" and more about different struggles in different topics and areas (though not a lot of people seem to understand that, unfortunately). After all, autism is a spectrum, not a scale.

And if you're interested in why golden is the color of choice for us, that'd be because the periodic symbol for gold is Au, which I think is very clever, haha.

Some people also like to use red or plain yellow, I don't know a lot about that, but I'd recommend you research it.

And since we're on the topic of color, just a warning: in the Autistic Community we kind of avoid using blue to represent us, especially because it is heavily associated with Autism Speaks' "Light It Up Blue" movement.

Blue is seen as a representation of feelings like sadness, as well as being commonly associated with boys (this is important because women and other AFAB are often misdiagnosed and underdiagnosed because many people still think autism is only found in boys, and because many traits are viewed as "normal behavior" in AFAB people).

This isn't to say you can't use blue in the title of your PowerPoint presentation about ASD, it's just a thing we try to avoid.

Well, that should be all.

I decided to make this post because I've seen many people post about which symbols to use for Autism Awareness Month, but no one explaining why.

Thought this could help some poor lost soul understand it, lol

Happy Autism Awareness Month, my beloved Yippies, and a thank you to everyone who stopped to read <3 (heart).

Now I'm gonna go clean my search history and my gallery, just reading "Autism Speaks" gives me the ick.

You gotta write for funsies sometimes. Everything doesn’t have to be groundbreaking. Like. Who cares if it’s a little silly it is made out of love

Internal Autistic Traits

Neurodivergence_Lou

Also this autism acceptance and awareness month please stop using the term going Nonverbal or going nonspeaking when you are having a temporary loss of speech. Use a term like verbal shutdown or speech loss episode instead. As a Nonverbal autistic I am tired of speaking people using the term Nonverbal or nonspeaking to describe their verbal shutdowns

While I do get your point, I still don't think it is reasonable to call any sign language useless, especially when speaking with someone who would very much benefit from learning it.

What do verbal, hearing people have against sign language?

I'm a hearing-able and "usually" verbal person, but since I'm autistic I sometimes go into verbal shutdown.

Both because of that and because I simply find sign languages to be important languages that should be more normalized around the globe, I really wanted to have the opportunity to learn my country's sign language properly.

However, whenever I mention that to certain people, they'll tell me it's useless and pointless because I don't know any deaf, hard-of-hearing or nonverbal individuals.

Like????? Excuse me?????

I don't know about other countries, but we don't have the chance to learn sign in Portuguese schools and I personally think we should be taught to communicate easily with everyone in our own country before being taught how to communicate with foreigns.

Sign languages are languages like any other. When my friends chose to learn French and German no one told them it was useless because they don't know any French or German people, so what's the big deal with sign language?

I apologize to any and every deaf, Deaf, hard-of-hearing, non-verbal or semiverbal person reading this for how rude some jerks out there can be.

(Also, sorry if hearing-abled isn't the correct term, I can’t really find an answer anywhere)

"everyone should care about accessibility because most people will become disabled at some point in their life" is a logical argument and I understand its popularity

however, everyone should care about accessibility because disabled people are fellow human beings living in the same society as you who deserve the same rights as you

thank you good night

Want to be part of a group blog on how to write neurodivergent characters?

[Large text: "Want to be part of a group blog on how to write neurodivergent characters?"]

I've found Tumblr blogs on writing physically disabled and POC characters, but nothing specifically for neurodivergence.

Maybe there is something I just haven't found yet, but even if so, I think the most resources the better.

So, hi! I'm Amethyst — amateur writer and neurodivergent, and now looking for people to help me out with this project.

I could try this on my own, but I would rather have other neurodivergents with me (especially with different conditions from mine)

Does anyone want to help me make a change?

reblog if you’ve read fanfictions that are more professional, better written than some actual novels. I’m trying to see something